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Middle of the Night Headache

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    Middle of the Night Headache

    I have these weird headaches in the middle of the night. They happen about once every 6 months and hurt like nothing I've ever felt before! The pain is so severe and nothing helps. I've tried all different kinds of pain killers, heat, ice, and nothing works. I wake up around 1 or 2am and it usually lasts throughout the night and into the next day. But as the day goes on it goes away. I've taken my blood pressure and it's been normal every time; however I also take my temperature and it is consistently VERY low, around 94 degrees Fahrenheit. Anyone have any ideas on what this could be? There's more I could go into about what happens the day before I have these episodes but I thought I would keep this short and to the point. PLEASE HELP!!!!!!!!!!

    #2
    In Every way, It sounds like a Migraine--A specific type of neurological disorder. Mine too start at 1-2am. Most last at least one day. Get it checked out.


    Linnie

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      #3
      I thought so too, however my doctor said they definitely aren't migraines because of the location. She said migraines are present behind the eyes in the front of head. My headache is always in the back kinda on the top of my head. Other than that, you're right though, it is just like a migraine!

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        #4
        hmmmmmmm -- my migraines are always a small spot on my left temporal lobe. A string of neuros for adults (and a neurosurgeon) describe that as a migraine.

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          #5
          Yea, mine aren't near the temporal lobe...I was trying to describe that general area! Haha, oops I didn't think to just say temporal lobe. Mine are more in the parietal area. It's odd, I've had a CT scan that was clean and now I'm just frustrated because we've run out of ideas. I was told to just learn to deal with it because if it was anything serious it would have gotten worse by now. UGH!!! So now I am on a mission to diagnose myself.

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            #6
            After only a little research, I have decided that my night time headaches could be Thunderclap headaches. I'm not sure but so far, that's the best category I've come across that sounds most similar to mine. Does anyone have experience with Thunderclap headaches or know about them?

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              #7
              I looked them up. They sound a bit like what we'd been calling "Cluster Headaches" in my daughter, which some people refer to as "suicide headaches" because they are excruciating. When she'd get them, she'd start banging her head against a wall, and we thought she was "crazy" but then I found that other people with them do the same thing! Thank GOD she doesn't get them anymore! I can't say why they came or why they stopped. She did have complex migraines with blood vessel dilatation (she also had very low blood pressure), but these sudden excruciating things were a completely different animal, so to speak. I think maybe they were brought on by multiple factors - meds, poor sleep, stress, food reactions.

              Here is info about the Cluster Headache: Only registered and activated users can see links., Click Here To Register...
              Last edited by Naominjw; 11-10-2011, 06:43 AM.

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                #8
                Hmm, that's interesting. Hopefully we can stop mine! I will have to look that up, thanks for the link!!

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                  #9
                  The most cerebrospinal fluid is produced at night. Do you notice significant change with posture? When my csf level is elevated, I cannot lay flat. Have to sleep in a recliner. Give it a try. If it helps, you might mention that to your md.

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                    #10
                    No, it doesn't seem to change. I usually have to walk from my room to the kitchen multiple times and then back to my room to lie down. I heat up one of those cloth things that are filled with sand in the mircowave and the heat seems to help a little. Usually, though, I have to make it so hot to feel any difference, that it leaves little burn spots on my head and neck. Thank you for your concern, and I've been wondering if it isn't something to do with my CSF. Do you know if it still could be, even though the intensity doesn't change with my posture?

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                      #11
                      Originally posted by LeakyLaurainwv View Post
                      The most cerebrospinal fluid is produced at night. Do you notice significant change with posture? When my csf level is elevated, I cannot lay flat. Have to sleep in a recliner. Give it a try. If it helps, you might mention that to your md.
                      Interesting; the majority of my waking headaches will go away once I get out of bed. (How do you know when your CSF level is elevated?)

                      suse

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                        #12
                        I would give anything to be able to stop my waking headaches. I have never felt so much pain before. And that's a good question, how do you know when your CSF is elevated? I've been most recently looking into Vasculitis to see if that could be it. Not sure but I don't have anything else at the moment so I thought it was worth looking into.

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                          #13
                          I'm not so sure you aren't suffering from some sort of migraine variant. Has your doctor let you try any of the triptans (imitrex, relpax, zomig, maxalt, etc) and did they help?

                          Migraine or not, you may not find the "cause" of your headaches. Vasculitis and CSF disorders sound unlikely given the symptoms you've described. Possibly it could be some type of neuralgia? The vast majority of headaches are "functional", meaning there is no underlying disease. That doesn't mean they are any less painful or should not be adequately treated. Have you considered consulting a headache specialist?

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