G'day neuro buddies.
Grant's Micky Button (PEG) has been leaking a bit lately around the sides. Small amounts of blood come out during the night leaving the stoma area quite dark (blood).
We also noticed, which we have never noticed before, that a few times there seemed to be, for want of a better term, a hissing sound coming from the PEG for a few seconds.
Without delay, this morning I phoned the PEG outreach nurse. She will visit tomorrow (that's pretty quick isn't it :), and have an evaluation to see if the PEG needs replacing.
I will let you know what happens.
Paul, Alison and Grant the champ in championship mode.


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Lisa O: mom to Caitlin (12-CP, VA shunt, seizures), Brandon (10), Tyler (7), Logan (5)