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Thread: Useful books on MS and related subjects

  1. #1
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    Default Useful books on MS and related subjects

    We have a sticky for Useful Websites. After the recent discussion of books, I wondered if we shouldn't at least have a thread on the subject. Maybe it will even reach sticky status later.

    Evaluate, Adapt, And Overcome: Accept No Limits In Life, by Craig Mattice
    Personal journey
    Written by our own NeuroNixed Craig

    Awkward B*i*t*c*h [without the asterisks]: My Life with MS, by Marlo Donato Parmelee
    Personal journey
    Book brought to our attention by Gabriella7

    Facing the Cognitive Challenges of Multiple Sclerosis, by Jeffrey N. Gringold
    Personal journey.

    Mental Sharpening Stones, by Jeffrey N. Gringold
    Real-life techniques “shows how intellectual faculties can be retained and even sharpened through a program of mental discipline.”

    And did you know there is actually a book called
    MS for Dummies, foreward by David L. Lander (Squiggy from Laverne and Shirley)?

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    Distinguished Community Member SalpalSally's Avatar
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    Thanks Parsi, super!!! I'll check to see if they are all on Kindle. I know Craigs is,,
    Love, Sally


    "The best way out is always through". Robert Frost







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    Thankd Paris

    Abby
    Stand for something or you will fall for anything

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    Distinguished Community Member agate's Avatar
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    Good idea, Parsi. You can ask the moderators to make this a sticky thread if that's what you want.

    Here are some books I know about:

    David L. Carroll and Jon Dudley Dorman, MD, Living Well with Multiple Sclerosis: A Guide for Patient, Caregiver and Family (1993) - In need of updating but has lots of practical advice, especially on exercise

    Patricia K. Coyle, MD, and June Halper, Meeting the Challenge of Progressive Multiple Sclerosis (2001) - Often out of date but has good common-sense advice

    Lisa I. Iezzoni, When Walking Fails: Mobility Problems of Adults with Chronic Conditions (2003) - Written by an MD who has MS

    Rosalind Kalb, Multiple Sclerosis: The Questions You Have--The Answers You Need (2004, 3rd ed.) - this is the book I've seen recommended most often as a standard guide

    Shelley Peterman Schwarz, Multiple Sclerosis: 300 Tips for Making Life Easier (2006, 2nd ed.)

    Howard L. Weiner, MD, Curing MS: How Science is Solving the Mysteries of Multiple Sclerosis (2004) -The author has been an MS neurologist for over 30 years. The book appeared before Tysabri came along.

    Accounts by or about people with MS:

    Max Apple, Roommates: My Grandfather's Story (1994) - a true account by a man whose wife becomes disabled by MS

    Richard M. Cohen, Blindsided: Lifting a Life above Illness: A Reluctant Memoir (2004) - The author had both MS and colon cancer, and his father was a doctor with MS

    David L. Lander and Lee Montgomery, Fall Down Laughing: How Squiggy Caught Multiple Sclerosis and Didn't Tell Nobody (2000)
    --by Squiggy of the "Laverne and Shirley Show"

    David Milofsky, Playing from Memory (1982) - a novel about a man with MS

    Ben Sonnenberg, Lost Property: Memoirs and Confessions of a Bad Boy (1991) - autobiography by a man who mingled among the rich and famous. Interesting account of his MS

    Some of these books might be available through your MS Society chapter's lending library if they have one.
    Last edited by agate; 10-10-2011 at 12:38 PM.
    MS diagnosed 1980. Avonex 2002-2005. Copaxone 6/07 - 5/10.
    Member of this MS board since 2001.

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    Multiple Sclerosis Manifesto by Julie Stachowiak.Here is another excellent book written by a women who has lots of information for women. Julie Stachowiak, PhD is the About.com Guide to Multiple Sclerosis. As an epidemiologist who is also a person living with MS, Julie has an in-depth understanding about the scientific developments around MS and the personal side of living with a chronic illness. She has been called the best MS writer on the web. In the Multiple Sclerosis Manifesto Julie has given us a call to self-help, self-reliance, and political action. Published in 2010 by demosHEALTH, paperback book of 337 pages

    Overcoming Multiple Sclerosis by Professor George Jelinek Through an exhaustive, evidence-based analysis of medical research, Professor Jelinek reached the surprising conclusion that MS is a disease largely determined by lifestyle factors. He has demonstrated that people with MS who modify their diet, exercise habits, and other aspects of lifestyle can stabilise the illness and potentially recover. Professor Jelinek's experience with his mother's death from MS, and his own diagnosis in 1999, lend an urgency and compassion to this meticulous work. Published in 2010 by Allen & Unwin. paperback book of 373 pages

    Managing Multiple Sclerosis Naturally A Self-Help Guide to Living with MS, Judy Graham. Judy Graham is an inspiration. Diagnosed with multiple sclerosis when she was just 26 years old, 36 years later Judy Graham is still walking, working, and has successfully birthed and raised a son who is now an adult. In this totally revised and updated edition of her groundbreaking Multiple Sclerosis, first published in 1984, she shares the natural treatments that have helped her and many others with MS stabilize or even reverse the condition. Judy Graham is the editor of New Pathways a magazine for people with MS, has worked as a TV producer for the BBC and other UK channels, and has written for many newpapers and magazines. She is the author of six books, including Multiple Sclerosis and Having a Baby, and lives in London, UK. Published in 2010 by Healing Arts Press, Rochester, Vermont. paperback book of 372 pages

    The Multiple Sclerosis Association of America has a lending library and it is cost free as they will send you a postage paid bag to return the books. These three books really have a lot of useful information and practical research for both newly diagnosed and progressive patients as well. I would rate these the top three MS resource books in my library.

    Gabriella
    Last edited by Gabriella7; 10-14-2011 at 12:11 PM.
    Progressive/Relapsing MS, Myasthenia Gravis, Spinal Stenosis, Degenerative Disc Disease, Diabetes, Hypertension, Hashimoto's Thyroiditis
    Advocate for ADA, Artist's Community for Change, ADAPT, Universal Living in Place, HopeKeepers, Complementary and Alternative Medicine

    "Life is mostly froth and bubble, two things stand like stone. Kindness in another's trouble, Courage in your own"........Adam Lindsay Gordon

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    Distinguished Community Member agate's Avatar
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    More titles--these are personal accounts by people with MS:

    Bruce Cummings, writing under the pseudonym W. N. P. Barbellion, The Journal of a Disappointed Man (1919)
    (The author lived from 1889 to 1919 and wrote one of the best known early accounts by someone with MS)

    Terri Garr, Speedbumps: Flooring It through Hollywood (2005) - Account by the actress/dancer
    MS diagnosed 1980. Avonex 2002-2005. Copaxone 6/07 - 5/10.
    Member of this MS board since 2001.

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    Dr. Doidge has expanded his work since The Brain That Changes Itself to another, The Brain's Way of Healing, that speaks to brain energy and neuroplasticity, including therapies for MS. I found this great Q+A from him on its contents:

    http://m.theglobeandmail.com/life/he...service=mobile
    Last edited by SuzE-Q; 01-24-2015 at 11:02 AM. Reason: Correct book names

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    Thanks SuzE, I may have to get that book!!
    Love, Sally


    "The best way out is always through". Robert Frost







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    Thanks to everyone. I'm gonna have to go to the book store & check out what they have.

    Peace
    The early bird catches the worms~~~~~that means, I wake up early and have worms. lol

    That's my son's words of wisdom to me! ! lol

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    Understanding the Unique Role Of Fatigue In Multiple Sclerosis
    by: J. Lamar Freed, Psy.D.

    This is not a book, but an article. Several members here recommend it. It is quoted in the following thread:
    http://www.braintalkcommunities.org/...6373#post46373
    Last edited by Parsi; 01-18-2016 at 01:39 AM.

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