Distinguished Community Member
For Mama Sue
Wherever you are, I pray that you are safe, loved, well and healing.
Should you ever find your way here, I hope that your heart will be warmed, knowing that this forum still exists in tribute to your brave and beautiful boys, Bobby and Matthew. Their courage inspired all of us, as does your strength and faith in enduring everything God placed before you.
I hope that other parents of children with Norrie Disease will visit this forum and begin sharing with each other, which was always your greatest goal.
You will forever remain in my heart, thoughts and prayers, dear friend ~
God Bless You ~
Love & Light,
Mom to Jon, 43, (seizure disorder; Gtube; trache; colostomy; osteoporosis; hypothyroid; enlarged prostate; assorted mysteries) and Michael, 32, (intractable seizures; Gtube), who were born with an undiagnosed progressive neuromuscular disease and courageous spirits. Our Angel Michael received his wings in 2003 and now resides in Heaven. Our Angel Jon lives at home with me and Jim, the world's most wonderful dad.