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Thread: The Really Good News

  1. #31
    Distinguished Community Member Earth Mother 2 Angels's Avatar
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    ((((((Donna)))))) ~

    I am so sorry that your dear friend lost her husband, and I send prayers of comfort, peace, and healing to her, her son, her family and loved ones, including you. What a tremendous friend you are, Donna. Cleaning her house, making fresh beds for incoming guests. I can certainly imagine how grateful your friend is for all that you've done to help her through this traumatic and painful experience. Bless you, Donna. You are so thoughtful, loving, and compassionate. And you just roll up your sleeves and get in there and do what needs to be done. No one has to tell you or ask you. You just do it. One of the many fine qualities about you that I love.

    Regarding Jon's bowel issues ~ his first episode occurred before we started PT. I checked Jon's chart, and it was a week before PT visited. But that was a fabulous guess, and you win points for that one!

    So far today, Jon is producing through his colostomy, and his rear was clear after his bath today. An ancillary problem associated with Jon's rectal dysfunction is that it contaminates the OptiFoam pad, which we have on Jon's coccyx wound. And those puppies are not cheap, and we have to beg to get them delivered to us.

    Jon's hip pain seems to be mitigated by the lower elevation of his leg. PT explained that the pain is related to the metal rod and pins aggravating everything surrounding them. Breaks my heart that Jon must endure this pain. But we had no choice. It was Christmas in ICU with a broken hip in 2004, and in 2005, the best orthopedic surgeon in our area placed the rod and pins to keep Jon functional. We did what we had to do at the time. These many years later, who knows what is going on inside Jon's leg?

    Today, SATS, heart rate and temp are great. Urine output is excellent, albeit held for hours, before being expelled. Jon is alert, verbal, and in Captain Demando Mode.

    He likes to drop his DVD holder, and the paper inside of it, which he takes out, and his hanky, and his pillow on the floor. That is a lot of stooping over and picking up for this old Mama. So, my only option is to withhold those items from him, because, quite honestly, my back is wearing out. Then, Jon begins asking for each of those items, repeatedly, so I give in. And back to stooping and picking up, I go.

    ((((((Mary Grace)))))) ~

    Believe it or not ...



    is an emoticon/smilie we have here at BrainTalk! Just type an asterisk (*) and then beach next to it without a space. Then preview your post!

    One of my stress relievers is to close my eyes and imagine that I'm on a tropical island, on the beach, next to the ocean, holding a fruity tropical drink with an umbrella, and listening to some island music off in the distance. Periodically, a cute cabana boy fans me with a large palm frond.

    And for just a few moments, I vacate. I am there. I feel tropical sea breezes. I smell pineapple and coconut and bananas. And I think of nothing. Nothing. I breathe. I imagine. I put myself there. It's relaxing and lovely. The temperature is perfect. Everything is ideal.

    When I return to reality, I feel a bit more centered and able to move forward.



    Any news on cancellations at Boston Children's yet? How is Kathleen managing with her Angry Birds neckbrace? How are YOU doing?

    Sending love to you both and to all ~

    Love & Light,

    Rose
    Mom to Jon, 48, (seizure disorder; Gtube; trache; colostomy; osteoporosis; hypothyroid; enlarged prostate; lymphedema, assorted mysteries) and Michael, 32, (intractable seizures; Gtube), who were born with an undiagnosed progressive neuromuscular disease and courageous spirits. Our Angel Michael received his wings in 2003 and now resides in Heaven. Our Angel Jon lives at home with me and Jim, the world's most wonderful dad.

  2. #32
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    Rose, I hope Jon is doing well and you all had a great weekend. I may visit your happy place it sounds amazing and so relaxing. Your words make it easy to visualize.
    No news on a cancelation...
    Mary Grace

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