Page 1 of 3 123 LastLast
Results 1 to 10 of 29

Thread: "Sailing Sclerosis," voyage around the world with people with MS as the crew

  1. #1
    Distinguished Community Member agate's Avatar
    Join Date
    Oct 2006
    Location
    USA
    Posts
    6,712
    Blog Entries
    11

    Default "Sailing Sclerosis," voyage around the world with people with MS as the crew

    Biogen Idec is sponsoring a project called Oceans of Hope or Sailing Sclerosis. People with MS are in charge of the yacht, which is going around the world.

    http://www.sailingsclerosis.com/ocea...enhagen-today/
    Last edited by agate; 06-16-2014 at 10:01 PM.
    MS diagnosed 1980. Avonex 2002-2005. Copaxone 6/07 - 5/10.
    Member of this MS board since 2001.

  2. #2
    Distinguished Community Member Howie's Avatar
    Join Date
    Oct 2006
    Location
    The planet Earth
    Posts
    5,854

    Default

    I hope they make it. The open ocean is a very unforgiving place, and that size ship, with that many people? I wish them luck!

  3. #3
    Distinguished Community Member SalpalSally's Avatar
    Join Date
    Oct 2006
    Location
    SWOhio
    Posts
    3,569

    Default

    Did you notice that the only PWMS being invited on this Biogen "promotional" trip
    are ones showing little to no disability!! How is that going to show what the true
    picture of MS is? BAH!! I really do not, to say the least, like Biogen for this act.
    Love, Sally


    "The best way out is always through". Robert Frost







  4. #4
    Distinguished Community Member Howie's Avatar
    Join Date
    Oct 2006
    Location
    The planet Earth
    Posts
    5,854

    Thumbs up

    Well, I signed up for the Oceans of Hope newsletter. I am interested in their journey, and this way I can get up-to-date info.
    Roswell was a gift.

  5. #5
    Distinguished Community Member agate's Avatar
    Join Date
    Oct 2006
    Location
    USA
    Posts
    6,712
    Blog Entries
    11

    Default

    Sally, I gave a bitter laugh when I saw this deal too.

    Can you imagine all of us here being put in charge of a yacht going around the world? Oy-yoy-yoy!

    I hope somebody on board is able-bodied enough to take charge in case of an emergency like a bad storm.

    Or an attack by sharks. Or whatever.

    Oceans of PR for Biogen.
    Last edited by agate; 06-16-2014 at 10:02 PM.
    MS diagnosed 1980. Avonex 2002-2005. Copaxone 6/07 - 5/10.
    Member of this MS board since 2001.

  6. #6
    Distinguished Community Member Howie's Avatar
    Join Date
    Oct 2006
    Location
    The planet Earth
    Posts
    5,854

    Cool

    Whooooooooooooooo lives in a pineapple under the sea?
    SpongeBob Howie!!!

    Practicing my singing of sailing songs incase someone has to drop out.
    Roswell was a gift.

  7. #7
    Distinguished Community Member
    Join Date
    Oct 2006
    Location
    The South
    Posts
    549

    Default Unbelievable!

    I'm glad my reaction was shared by others here! Since I've been in a dark place lately.....my first thought was very cynical as I didn't see even a cane amongst the crew members. (Looked again and saw one cane) No wheelchairs, power chairs, walkers, etc....What a publicity stunt for BigPharma Biogen! It will be interesting to follow the voyage! What is this stunt supposed to prove? Is it going to attempt to validate the effectiveness of Biogen drugs in the treatment of MS? What are they trying to prove since really they can't prove anything to those of us who have lived with MS for years.

    In my opinion, this is an insult to all people who live with MS as it gives the general public the impression that we who do have a disabling disease are faking it as this voyage would be extremely difficult for a healthy individual without any health problems in excellent physical condition to complete.

    Blessings,
    Gabriella
    Last edited by Gabriella7; 06-16-2014 at 09:33 PM.
    Progressive/Relapsing MS, Myasthenia Gravis, Spinal Stenosis, Degenerative Disc Disease, Diabetes, Hypertension, Hashimoto's Thyroiditis
    Advocate for ADA, Artist's Community for Change, ADAPT, Universal Living in Place, HopeKeepers, Complementary and Alternative Medicine

    "Life is mostly froth and bubble, two things stand like stone. Kindness in another's trouble, Courage in your own"........Adam Lindsay Gordon

  8. #8
    Distinguished Community Member agate's Avatar
    Join Date
    Oct 2006
    Location
    USA
    Posts
    6,712
    Blog Entries
    11

    Default

    Words for a sailing song to practice on:

    http://www.wtv-zone.com/phyrst/audio...shofthesea.htm
    Last edited by agate; 06-16-2014 at 09:43 PM.
    MS diagnosed 1980. Avonex 2002-2005. Copaxone 6/07 - 5/10.
    Member of this MS board since 2001.

  9. #9
    Distinguished Community Member Howie's Avatar
    Join Date
    Oct 2006
    Location
    The planet Earth
    Posts
    5,854

    Cool

    Darn sea critters!
    Roswell was a gift.

  10. #10
    Distinguished Community Member agate's Avatar
    Join Date
    Oct 2006
    Location
    USA
    Posts
    6,712
    Blog Entries
    11

    Default

    This is on the Website:

    We want to tell the world that disability can be changed to ability, that we will never stop trying to improve life. We want to create quality of life and value through responsibility and commitment. Sailing around the world is just that: it is hard work, commitment and dependency upon each other working as a team.
    We will show everyone that we live our lives to the fullest and that dreams can come true, in spite of having a serious disease. We'll be saying, "Yes, we can still do it!"
    It brings to mind a US stamp that was issued back in the 1980s, saying "Disabled Doesn't Mean Unable."

    MS diagnosed 1980. Avonex 2002-2005. Copaxone 6/07 - 5/10.
    Member of this MS board since 2001.

Page 1 of 3 123 LastLast

Similar Threads

  1. Blog for new "Body Work" therapy for Cerebral Palsy!
    By funnylegs4 in forum Cerebral Palsy
    Replies: 2
    Last Post: 06-21-2015, 02:07 PM
  2. Replies: 8
    Last Post: 01-25-2014, 09:25 PM
  3. Who killed my son? book exposes "biggest health scandal of our times"
    By flatfish in forum Creutzfeldt Jakobs Disease (CJD)
    Replies: 0
    Last Post: 08-03-2013, 08:35 AM
  4. Replies: 7
    Last Post: 10-29-2012, 09:05 AM
  5. Perceiving the "good" in the "bad"?
    By Green Xenon in forum Chit-Chat
    Replies: 6
    Last Post: 08-01-2012, 08:25 AM

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •  


BTC Inc's Disclaimer and Privacy Policy

The material on this site is for information & support purposes only, and is not a substitute for medical advice provided by a licensed health care provider. Always consult your doctor before trying anything that you find online.