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Thread: Swallowing Test Tomorrow

  1. #21
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    Default Agate

    Hi, I just called the urologist office and spoke with his nurse. He is out of the office for the next two weeks but she said to take the Macrobid that the ER had called in. You would not believe how many times I have taken this in the past 2 1/2 years since this infection started. The oral antibiotics just are not working anymore as the bacteria have become resistant. I may end up with IV antibiotics when I have the cystoscope and renal ultrasound which is scheduled for July 10th. In the meantime I just have to "grin and bear it".

    Blessings,
    Gabriella
    Progressive/Relapsing MS, Myasthenia Gravis, Spinal Stenosis, Degenerative Disc Disease, Diabetes, Hypertension, Hashimoto's Thyroiditis
    Advocate for ADA, Artist's Community for Change, ADAPT, Universal Living in Place, HopeKeepers, Complementary and Alternative Medicine

    "Life is mostly froth and bubble, two things stand like stone. Kindness in another's trouble, Courage in your own"........Adam Lindsay Gordon

  2. #22
    Distinguished Community Member agate's Avatar
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    Quote Originally Posted by Gabriella7 View Post
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    Hi, I just called the urologist office and spoke with his nurse. He is out of the office for the next two weeks but she said to take the Macrobid that the ER had called in. You would not believe how many times I have taken this in the past 2 1/2 years since this infection started. The oral antibiotics just are not working anymore as the bacteria have become resistant. I may end up with IV antibiotics when I have the cystoscope and renal ultrasound which is scheduled for July 10th. In the meantime I just have to "grin and bear it".

    Blessings,
    Gabriella
    It's kind of hard to grin and bear it if you're having cold sweats and shaking with chills. I hope you have a primary care doc you can turn to if the symptoms are making you miserable. Sometimes there are medicines for symptom relief--like pyridium. I hope you keep telling any doctors who will listen that you're having cold sweats.
    MS, diagnosed 1980. Avonex 2001-2004. Copaxone 2006-2009.

  3. #23
    Distinguished Community Member jendie's Avatar
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    I'm sorry to hear about all the hoops they are making you jump through, Gabriella. Best of luck to you on your future tests. I hope they find the needed answers.
    Last edited by jendie; 06-26-2014 at 08:29 PM. Reason: fix a typs

    Jendie
    I've been a member of this forum during its different incarnations since I was dx in 9/98


  4. #24
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    Default Update

    I have stopped having the night sweats/chills since starting the Macrobid. So now I am just having the swallowing problem and I will be seeing a gastroenterologist this afternoon. My PCP just refers me out to specialists as he has told me "you are too complicated". Hopefully, I am closing in on the problem with multiple trips to see the specialists.....I now have a full time job again.....taking care of my medical issues.... to be continued.......

    Blessings,
    Gabriella
    Progressive/Relapsing MS, Myasthenia Gravis, Spinal Stenosis, Degenerative Disc Disease, Diabetes, Hypertension, Hashimoto's Thyroiditis
    Advocate for ADA, Artist's Community for Change, ADAPT, Universal Living in Place, HopeKeepers, Complementary and Alternative Medicine

    "Life is mostly froth and bubble, two things stand like stone. Kindness in another's trouble, Courage in your own"........Adam Lindsay Gordon

  5. #25
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    Default Another Test

    I saw the gastrologist today and now have a full barium swallow test scheduled for the 9th of July the day before the bladder cystoscope and renal ultrasound of my kidneys. He does not want to do the procedure where they use a scope unless it is necessary. That is because of the Myasthenia Gravis that was diagnosed about 3 years ago, while in the hospital, as I could have respiratory problems with the anesthesia and suffer a "double whammy" as he described it.

    I definately agree. I am going to the mountains to de-stress for a while before I have these tests.

    To be continued........

    Blessings,
    Gabriella
    Progressive/Relapsing MS, Myasthenia Gravis, Spinal Stenosis, Degenerative Disc Disease, Diabetes, Hypertension, Hashimoto's Thyroiditis
    Advocate for ADA, Artist's Community for Change, ADAPT, Universal Living in Place, HopeKeepers, Complementary and Alternative Medicine

    "Life is mostly froth and bubble, two things stand like stone. Kindness in another's trouble, Courage in your own"........Adam Lindsay Gordon

  6. #26

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    Hi Gabriella. I have made my nearly annual return to the forum to check up on old favorites and ask if anyone had information about a "swallow study" as the ER doc here called it. Between you and Cat, I will be coming back for a while. I do not post much. but want you to know you will be in my prayers. I am sorry your load keeps getting heavier. I hope it gets easier. Lumaie

  7. #27
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    I'm happy I had a week in the mountains to de-stress before returning to the problems which have been presented to me. The barium swallow test showed a mass located at the end of my esophagus and into the stomach. This explains why I cannot swallow anything but liquids but it does not tell the doctors what it is. The gastrologist laid out all the possiblities and possible further events concerning testing. I am to have a c-scan with contrast first and have to be prepped as I am allergic to the contrast material. It will have to be done at the hospital and I am still waiting to hear when that will happen. I saw my neurologist first and he wanted me to have 3 days of IVIG to treat MS & MG as I am too weak to do anything but lay in bed. Also waiting to see when that will happen. Both will be out patient but I wish they could be done in the hospital at the same time so I would not have to drive an hour both ways as it is so tiring.

    In the meantime, I am taking one day at a time and trying to not dwell on the future or the past too much......

    Blessings,
    Gabriella
    Progressive/Relapsing MS, Myasthenia Gravis, Spinal Stenosis, Degenerative Disc Disease, Diabetes, Hypertension, Hashimoto's Thyroiditis
    Advocate for ADA, Artist's Community for Change, ADAPT, Universal Living in Place, HopeKeepers, Complementary and Alternative Medicine

    "Life is mostly froth and bubble, two things stand like stone. Kindness in another's trouble, Courage in your own"........Adam Lindsay Gordon

  8. #28
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    Wow! So much going on Gabriella. I had a constant UTI for nearly 2 years and nothing was touching it including IV antibiotics. I was also on Rebif at the time and the Immunologist finally determined that it was suppressing my immune system so much that I did not have enough antibodies to fight the infection. So they stopped the Rebif and started me on IVIg daily for 5 days then weekly for three weeks and the infection cleared with no more antibiotics on board. Restarted the Rebif and in 2 weeks, the infection was back. So that is when we changed course altogether treating the MS. I am (5 years later) back on Rebif with no UTIs.

    Also had swallowing problems back around that time and esophageal erosion and it was determined that the bone density meds I was taking were causing the problem. So now I'm on the once a year IV Reclast and doing a lot better all around. I hope you get a handle on this quickly. Sounds like that trip to the ER was a blessing for you.
    Last edited by Cherie; 07-15-2014 at 04:30 PM.

  9. #29
    Distinguished Community Member agate's Avatar
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    A number of people on this board are having really rugged times right now. Gabriella, you've had so many medical problems and procedures that you must be very tired just dealing with all of them, what with having to turn up for scheduled appointments and have obnoxious things done to you.

    You mentioned wishing that the procedures wouldn't be done on an outpatient basis. I've heard that more and more hospitals are opting for outpatient care whenever feasible, mainly because the risk of infection is so great if you're in a hospital for any length of time.

    Since your case is pretty complicated, I hope somebody is overseeing everything and making sure your tests and medicines, everything about your care, is being coordinated so there's no situation where the right hand doesn't know what the left hand is doing.

    Taking it one day at a time and living in the moment--that sounds good.
    MS, diagnosed 1980. Avonex 2001-2004. Copaxone 2006-2009.

  10. #30
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    :) Wow Gabriella that is a lot to deal with. You have been in my prayers and I will add a few more for you. It is hard to do all the things we need to do when we have no energy. I'm glad you keep us posted on how it is going.

    Virginia has not posted in awhile. Tomorrow is her birthday so I hope she will check in and we can wish her a happy birthday.

    I am staying in the bed a lot and in pajamas. I cannot believe how much I can sleep but I am so tired I guess my body needs the rest. Take care everyone. Jeanie :)

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