Page 1 of 12 12345611 ... LastLast
Results 1 to 10 of 117

Thread: Swallowing Test Tomorrow

  1. #1
    Distinguished Community Member
    Join Date
    Oct 2006
    Location
    The South
    Posts
    549

    Default Swallowing Test Tomorrow

    I've had increasing difficulty with swallowing. My neuro ordered a "modified barium swallowing test" and I will be having it done tomorrow. This has been coming and going for years but in the past 6 months has gotten worse to the point that I have to stop eating because it has become very painful.

    At times, I also have an overabundance of saliva and have to go to the sink and spit and spit for 5-10 minutes or so. I really don't even want to eat anymore just because it is painful....I have no appetite.... but I know I have to. I've been very depressed lately and hate cooking for myself or even going out to eat alone.

    Anyone else have this symptom? I know everything is not MS so it needs to be checked out and I will probably followup with a gastroenterologist. I am still on antibiotics for UTI's which have lasted for over 2 years. I had to go and get the culture and sensitivity test with a urologist on Tuesday and if it comes back clear he wants to do a cystoscope to see if he can determine what if anything he can do for the neurogenic bladder. I need a bladder transplant but I don't think they can make a bladder that works.

    Blessings,
    Gabriella
    Last edited by Gabriella7; 06-13-2014 at 05:54 AM.
    Progressive/Relapsing MS, Myasthenia Gravis, Spinal Stenosis, Degenerative Disc Disease, Diabetes, Hypertension, Hashimoto's Thyroiditis
    Advocate for ADA, Artist's Community for Change, ADAPT, Universal Living in Place, HopeKeepers, Complementary and Alternative Medicine

    "Life is mostly froth and bubble, two things stand like stone. Kindness in another's trouble, Courage in your own"........Adam Lindsay Gordon

  2. #2
    Distinguished Community Member Lazarus's Avatar
    Join Date
    Oct 2006
    Location
    western MA
    Posts
    967

    Default I have lost 45 pounds in the last two years because of swallowing problems...

    I'm sorry you are having this frightening problem.
    I have lost loads of weight and have people saying that I look so great...even though I say that I did not try and that it was caused by MS complications.

    Anyway, it took me a while to figure out what was happening. Last summer I ended up in the hospital and that was when I first heard the term spasms applied to my esophagus. I have been drinking Ensure (not the one with a lot of sugar) since then and it has helped maintain my health.

    I have been using baclocen thinking it reduces leg cramps so might help throat cramps also. When it is really bad I use Valium which is a muscle relaxer. I have not fully discussed this with my neuro as there has been so much going that is more critical. I think my weight loss has stabilized.

    However, last week after working, my throat tightened so much that it felt as if there was no room for even water to slide down the side of what felt like a giant fist in my esophagus. Then I started throwing up but it was clear saliva that I threw up. I did not understand this or where the saliva came from. I was munching a carrot at the time so you would think I would throw up the carrot. It was frightening and painful.

    Anyway, eating foods that slide down easily and using some form of spasm medication is working...sort of.
    Linda~~~~

    Be the kind of woman that when your feet hit the floor each morning the devil says:"Oh Crap, She's up!"

  3. #3
    Distinguished Community Member SalpalSally's Avatar
    Join Date
    Oct 2006
    Location
    SWOhio
    Posts
    3,569

    Default

    So sorry to hear that Gabriella. I do hope that your Doc can come up
    with a solution for you. It sounds like it could be a part stress/anxiety
    issue. Maybe my AD helps alleviate some of that problem for me now?

    I used to have a big issue with that, but seldom now, thank God
    Last edited by SalpalSally; 06-13-2014 at 09:07 AM.
    Love, Sally


    "The best way out is always through". Robert Frost







  4. #4
    Distinguished Community Member
    Join Date
    Oct 2006
    Location
    Red Sox Nation :D
    Posts
    2,236

    Default

    Gabriella, I am sorry to hear of your problems swallowing. I hope there is a "fix."

    Linda - glad that you know what the problem is and have some ways of dealing w it.
    ANN
    There comes a time when silence is betrayal.- MLK

  5. #5
    Distinguished Community Member agate's Avatar
    Join Date
    Oct 2006
    Location
    USA
    Posts
    6,561
    Blog Entries
    11

    Default

    I'm so sorry you're having these problems, Gabriella, and Linda, that sounds like a very hard problem to deal with--and a very depressing one.

    . You absolutely have to eat to keep your strength up, so you'll be less susceptible to infection. Ensure sounds like one solution if you can swallow. I'm glad to know there are varieities with less sugar.

    Good luck with the test today, Gabriella. I hope some help will be there for you.
    MS diagnosed 1980. Avonex 2002-2005. Copaxone 6/07 - 5/10.
    Member of this MS board since 2001.

  6. #6
    Distinguished Community Member
    Join Date
    Oct 2006
    Location
    The South
    Posts
    549

    Default

    Well, I passed the swallowing test today. The radiologist was just looking at the swallowing part of the throat above the collar bone. The pain is more in the rest of the esophagus which will need to be seen and more testing done by a gastroenterologist. I am thankful I do not have the problem that my husband had with swallowing caused by ALS although it seemed similar. His food was not even going down the proper tube but trying to go down the windpipe each time.

    I have also lost about 30 pounds this past year. The therapist suggested I take very small bites of food and follow each bite with liquid. It has to be connected with the MS or the MG. She didn't know why I have had the problem with over abundance of saliva (which Linda has). I will call my neuro to see if there is a medication that can help. That is very scary as it feels like I am going to choke on the saliva. I've been making fruit/yogurt smoothies for a meal replacement so the Ensure with proper vitamins/minerals is a good idea as well as it slides down easy.

    When I got back home today....I had a message from the urologist's nurse which confirmed I still have an infection and he ordered more antibiotics as well as adding another test to the cystoscope scheduled on July 10th. He is out of his office for a couple of weeks. He is going ahead even though I have the infection and has ordered a renal ultrasound of my kidneys. I am glad he is finally trying to find out why I cannot get rid of an infection. Having an infection continously for 3 years has made life so hard as I am requiring 15-16 hours of rest every day.

    Blessings,
    Gabriella
    Last edited by Gabriella7; 06-13-2014 at 09:07 PM.
    Progressive/Relapsing MS, Myasthenia Gravis, Spinal Stenosis, Degenerative Disc Disease, Diabetes, Hypertension, Hashimoto's Thyroiditis
    Advocate for ADA, Artist's Community for Change, ADAPT, Universal Living in Place, HopeKeepers, Complementary and Alternative Medicine

    "Life is mostly froth and bubble, two things stand like stone. Kindness in another's trouble, Courage in your own"........Adam Lindsay Gordon

  7. #7
    Distinguished Community Member Jeanie Z's Avatar
    Join Date
    Dec 2006
    Location
    WPB,FL
    Posts
    1,351

    Smile

    :) Hi Gabriella I am sorry you are having so many problems all at the same time. I am resting a lot too as my groin and leg pain does not hurt when I lie down. I alwaya though getting old would be a picnic but it is far from that. Jeanie :)

  8. #8
    Distinguished Community Member jendie's Avatar
    Join Date
    Oct 2006
    Location
    On an island 75 miles NW of Seattle
    Posts
    386

    Default

    I have some swallowing problems. I frequently have episodes of food or drink going into my windpipe. I underwent the swallow tests about 14 years ago.

    Jendie
    I've been a member of this forum during its different incarnations since I was dx in 9/98


  9. #9
    Distinguished Community Member
    Join Date
    Oct 2006
    Location
    The South
    Posts
    549

    Default

    After 3 days of calling my neurologist office I finally got an answer this morning about the testing. I do have changes in my throat caused by the swallowing problem and they have called in Baclofen for me to try. I had a horrible episode yesterday and this morning my throat was so sore and my voice is raspy and hard to talk. I thought I was going to choke to death.

    Trying to get the answer from the nursing staff was very difficult as they kept telling me the test results were not back so they couldn't even ask the doctor for his recommendations. They even asked me if I have a gastroenterologist I could go to. These are nurses working in the MS Center who should know that these swallowing problems can be caused by the MS or MG. I finally had to get insistent by telling them they could get the results either by fax or computer and did not have to wait for the radiologist to contact them. I had to wait for over a month for the test to be done just because they didn't schedule it when it should have been done. The testing was done last Friday.

    Hopefully this will help.

    Blessings,
    Gabriella
    Progressive/Relapsing MS, Myasthenia Gravis, Spinal Stenosis, Degenerative Disc Disease, Diabetes, Hypertension, Hashimoto's Thyroiditis
    Advocate for ADA, Artist's Community for Change, ADAPT, Universal Living in Place, HopeKeepers, Complementary and Alternative Medicine

    "Life is mostly froth and bubble, two things stand like stone. Kindness in another's trouble, Courage in your own"........Adam Lindsay Gordon

  10. #10
    Distinguished Community Member agate's Avatar
    Join Date
    Oct 2006
    Location
    USA
    Posts
    6,561
    Blog Entries
    11

    Default

    Quote Originally Posted by Gabriella7 View Post
    This quote is hidden because you are ignoring this member. Show Quote
    After 3 days of calling my neurologist office I finally got an answer this morning about the testing. I do have changes in my throat caused by the swallowing problem and they have called in Baclofen for me to try. I had a horrible episode yesterday and this morning my throat was so sore and my voice is raspy and hard to talk. I thought I was going to choke to death.

    Trying to get the answer from the nursing staff was very difficult as they kept telling me the test results were not back so they couldn't even ask the doctor for his recommendations. They even asked me if I have a gastroenterologist I could go to. These are nurses working in the MS Center who should know that these swallowing problems can be caused by the MS or MG. I finally had to get insistent by telling them they could get the results either by fax or computer and did not have to wait for the radiologist to contact them. I had to wait for over a month for the test to be done just because they didn't schedule it when it should have been done. The testing was done last Friday.

    Hopefully this will help.

    Blessings,
    Gabriella
    The nurses at the MS Center don't know that MS or MG can cause swallowing problems? That's very disturbing.

    Maybe they do know but they need to rule out any other possible causes.

    Hope the Baclofen will give some relief in the meantime, while they're doing their poking around.
    MS diagnosed 1980. Avonex 2002-2005. Copaxone 6/07 - 5/10.
    Member of this MS board since 2001.

Page 1 of 12 12345611 ... LastLast

Similar Threads

  1. IEP tomorrow and a little excitement hopefully....
    By andromeda31 in forum Child Neurology
    Replies: 8
    Last Post: 03-24-2014, 05:59 AM
  2. Going blue tomorrow?
    By houghchrst in forum Autism
    Replies: 1
    Last Post: 04-07-2013, 10:20 PM
  3. Grant the champ turned 24 today. Here are two photos; video tomorrow.
    By Paul from Australia in forum Child Neurology
    Replies: 4
    Last Post: 07-19-2012, 06:04 PM
  4. Day 10: Jon Is Coming Home Tomorrow
    By Earth Mother 2 Angels in forum Child Neurology
    Replies: 7
    Last Post: 07-03-2012, 05:27 PM
  5. Swallowing Difficulties
    By newone in forum Multiple Sclerosis
    Replies: 10
    Last Post: 11-14-2011, 09:25 AM

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •  


BTC Inc's Disclaimer and Privacy Policy

The material on this site is for information & support purposes only, and is not a substitute for medical advice provided by a licensed health care provider. Always consult your doctor before trying anything that you find online.