Results 1 to 9 of 9

Thread: It's a Long, Long Road We Spinies Must Travel,,,,,,,,,,,,

  1. #1
    New Community Member Frost's Avatar
    Join Date
    Jan 2007
    Location
    Ottawa Ontario Canada
    Posts
    4

    Default It's a Long, Long Road We Spinies Must Travel,,,,,,,,,,,,

    ...................Guess not, then.

    See ya!
    Last edited by Frost; 02-26-2014 at 09:53 AM.
    ACDF C4/5 - 1998
    Hemi-Lam/Discectomy/foramenectomy C5/6 - 1999
    Occupation: Door-to-Door Anvil Salesman
    Mood: Usually chipper. Underwear: Black

  2. #2
    Distinguished Community Member
    Join Date
    Oct 2006
    Location
    S. Indiana
    Posts
    1,022

    Default

    Frost, you are right about the long road we travel. I think back to all my family and I have gone through the past 20 years dealing with this disease. I worked 6 years too long and probably about 12 years which I am paying for now. Along the way I have had some wonderful times but they have always been colored by pain. Right now our two young granddaughters are a wonderful part of our life but I find I miss out on too much of it. They sure do brighten up my day when they come over for a visit. The youngest one at 1.5 yrs is at that stage she is into everything exploring and always on the go; she wears grandpa out.

    How have the anvil sales been going? I hope you see this and write back as I always enjoyed your stories and outlook on life. I don't know if you remember Brion Larson but I keep up with him on FB and cancer is back and looks like it will win this time. He has had some quality years after beating cancer earlier but you can tell he is bummed out about it killing him this time.
    1979 spinal issues, 1993 lumbar microdisectomy L3-4, 1996 360 3 level lumbar fusion L2-5, 1999 open thoractomy fusion T8-9,
    2002 C3-7 herniations and T4-7 herniations, 2004 total disability, a new limited life

  3. #3

    Default

    Mark have they ever offered you the implanted stimulator on a trail basis? I have been on this list since 98 just don't talk ... Just hate seeing you suffer so much all this time. I am in the process of getting my trial now I am so anxious to see if it works as people who have them sure are impressed.

  4. #4
    Distinguished Community Member
    Join Date
    Oct 2006
    Location
    S. Indiana
    Posts
    1,022

    Default

    jennys mom, it isn't anything I am interested in based on the odds of it working. I hope it works out well for you as anything we can find that works better for us is worth it. I have excepted my situation and I know my A personality kept me pushing for too long instead of excepting how things were. I asked my daughter when she was a junior in HS if she missed out on too much because of my disability the past 5 years. Her answer shocked me because she said "no you have been disabled my whole life" and she was right but I never saw myself that way. Even though my pain and disability right now I still don't really see myself disabled.

    Once again good luck with the trial on the implanted stimulator.
    1979 spinal issues, 1993 lumbar microdisectomy L3-4, 1996 360 3 level lumbar fusion L2-5, 1999 open thoractomy fusion T8-9,
    2002 C3-7 herniations and T4-7 herniations, 2004 total disability, a new limited life

  5. #5
    Distinguished Community Member
    Join Date
    Oct 2006
    Location
    S. Indiana
    Posts
    1,022

    Default

    I saw this post and thought I would write again. After the usual lost day due to sleep, to make up for the lack of quality sleep over two days, I wake and you have to wonder how much our lives matter. Yet I still strive to see the next day and do what I can; I guess the spirit refuses to quit.
    1979 spinal issues, 1993 lumbar microdisectomy L3-4, 1996 360 3 level lumbar fusion L2-5, 1999 open thoractomy fusion T8-9,
    2002 C3-7 herniations and T4-7 herniations, 2004 total disability, a new limited life

  6. #6

    Default

    When I took my evaluation to get on the list for my scs one of my questions I was ask was what I would wish for if I could wish for anything. I said I would wish that they could come up with something to help all spineys in pain and that we could live a normal life.... the dr told me he had never had anyone answer that question that way. It told me hes never been in chronic pain...we all need to keep hoping for a miracle I guess but I am not ready to quit this fight quit yet. I just got a new camera never had a real nice one before. But I think I will enjoy taking pictures of the geese, turkeys, and deer at our farm. Grandkids of course will be the favorite. I have had to totally redo who I am but its not so bad in some ways...... I am sure you also have learned to appreciate the small things and watching our precious grands...... will check again someday and hope to see your posts.......

  7. #7
    Distinguished Community Member
    Join Date
    Oct 2006
    Location
    S. Indiana
    Posts
    1,022

    Default

    Jenny, you are right about what most of us would like to wish for as I have forgotten what a pain free from CP is like. Like you have have remade myself and appreciate the little things I can do. Our two granddaughters have brightened up my life as young children have a different perspective on life. Enjoy your camera and get all the pictures you want as they are fun to look at over the years.
    1979 spinal issues, 1993 lumbar microdisectomy L3-4, 1996 360 3 level lumbar fusion L2-5, 1999 open thoractomy fusion T8-9,
    2002 C3-7 herniations and T4-7 herniations, 2004 total disability, a new limited life

  8. #8

    Cool Wow, it's really been a long time . . .

    My computer has been updated at work and I was going through some bookmarks and came across BT. It's been a while since I've posted. Spinal issues are the same, well, not really, they're worse. I've developed a new issue in my thoracic area, between my shoulder blades and cannot get any relief. I have anklyosing spondylitis and osteoarthritis, several bulges in my cervical and thoracic spine, osteophytes pressing on nerves and the pain monster just keeps attacking. I am looking at retiring this year because I can't stand it anymore. Plus, the job just keeps piling on more responsibilities. They don't want to hear that I am a spiney and cannot do the things they are asking me to do.

    On the brighter side, I have a beautiful granddaughter who is five years old and she's keeping me young. I adore her to pieces.

    Hope all is well with everyone!

  9. #9
    Distinguished Community Member
    Join Date
    Oct 2006
    Location
    S. Indiana
    Posts
    1,022

    Default

    a-a, It is good to hear from you again. I have found that deep muscle massage have really helped me reduce some of my pain. Like you have find that I have more pain and limitations as the years go by and now not wanting to increase my pain meds the massage helps a lot. I really feel for you about the thoracic pains as I suffer in the same area along with my cervical issues now. I was surprised how much muscle tightness I could get relieved by massage but it is something I have to continue to do every couple of weeks or so. I hope you can retire when you want and not just because of the pain and spinie issues. I had to retire two decades before I wanted to retire and I don't wish that for anyone.
    1979 spinal issues, 1993 lumbar microdisectomy L3-4, 1996 360 3 level lumbar fusion L2-5, 1999 open thoractomy fusion T8-9,
    2002 C3-7 herniations and T4-7 herniations, 2004 total disability, a new limited life

Similar Threads

  1. It's been a LONG time
    By Brain waves in forum Epilepsy
    Replies: 6
    Last Post: 10-06-2013, 05:15 PM
  2. To much pain for way to long.HELP
    By HelpmePls in forum New member introductions
    Replies: 0
    Last Post: 05-06-2013, 03:05 AM
  3. a long break
    By joy in forum Emotional Support
    Replies: 6
    Last Post: 01-16-2013, 03:06 PM
  4. Day 5: A Very Long Day
    By Earth Mother 2 Angels in forum Child Neurology
    Replies: 4
    Last Post: 06-23-2012, 10:15 AM
  5. A long over due update
    By grace.mackay in forum Trigeminal Neuralgia
    Replies: 2
    Last Post: 09-17-2011, 08:47 AM

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •  


BTC Inc's Disclaimer and Privacy Policy

The material on this site is for information & support purposes only, and is not a substitute for medical advice provided by a licensed health care provider. Always consult your doctor before trying anything that you find online.