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Thread: "When I Walk"--about young filmmaker's MS--being shown on PBS

  1. #21
    Distinguished Community Member Lazarus's Avatar
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    Default I missed it when it was shown but......

    I found that I could watch the whole thing on my iPad . I just searched the title and found it easily. I have not watched it yet but plan to .....
    Linda~~~~

    Be the kind of woman that when your feet hit the floor each morning the devil says:"Oh Crap, She's up!"

  2. #22
    Distinguished Community Member agate's Avatar
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    I kept trying to get this program on TV but they must have kept changing the times or decided not to air it in this area because it was never there. It's nice that it will be available in streaming form so I can see it online until July 25. I hope to watch it tonight.
    MS diagnosed 1980. Avonex 2002-2005. Copaxone 6/07 - 5/10.
    Member of this MS board since 2001.

  3. #23
    Distinguished Community Member SalpalSally's Avatar
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    Here is the video. I hope this works. I just
    watched the whole thing and enjoyed every
    minute of it.
    http://video.pbs.org/video/2365271212/
    Love, Sally


    "The best way out is always through". Robert Frost







  4. #24

    Default

    I thought Jason did a great job. It was a stark, honest portrayal, and he was fortunate to have footage from his first stumbles on his family vacation before diagnosis. He showed glimpses of so many important aspects...like there are a lot of snake-oil "cures" out there that don't work, like exercise doesn't help stop progression, like accessibility is a major problem, even to the point of him not being able to go to the hospital with his wife in an emergency.

    I thought he did a great job. Well done, Jason & Alice! If his next project is about the financial implications, that will also be very informative.

    I think it's important to counteract the Big Pharma's "happy, happy" videos of how easy MS is to live with if you take their drugs...think of all the wonderful adrenaline sports you can partake in and all the marathons you can run! Yes, you may be able to do that, but in my own experience, not BECAUSE of the MS meds, but because the disease itself has not yet caused significant demyelination and MS is still in its early stages.

    Jason gives a far more realistic view, albeit from a PPMS perspective. But that perspective is important too, and, he shows much that many with RRMS experience at a slower rate. I appreciate the caregiver's perspective as well. It's not just the person with MS, but their loved ones that are impacted as well.

    Overall, I thought it was worthy of the wider audience and I hope many people get a chance to see it.

  5. #25
    Distinguished Community Member SalpalSally's Avatar
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    Nice post DB. You took took the words right out of my mouth.
    Love, Sally


    "The best way out is always through". Robert Frost







  6. #26
    Distinguished Community Member agate's Avatar
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    DB, you summed up my reaction as well. I just finished watching it on the computer screen. It's high time the world got a picture of what MS is like day to day, year after year, for many people, and this movie gives that picture.

    Seems Jason has a blog with a recent entry in it:

    http://wheniwalk.com/blog/
    Last edited by agate; 06-25-2014 at 08:32 PM.
    MS diagnosed 1980. Avonex 2002-2005. Copaxone 6/07 - 5/10.
    Member of this MS board since 2001.

  7. #27
    Distinguished Community Member SalpalSally's Avatar
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    Thanks for the link Joan.
    Love, Sally


    "The best way out is always through". Robert Frost







  8. #28
    Community Member Matthew's Mom's Avatar
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    Default

    Watched it last night, even with all the "hard" times loved the ending : )

  9. #29
    Distinguished Community Member SalpalSally's Avatar
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    Some body ought to send this video to be Viewed, on that phoney Biogen cruise!!!
    Love, Sally


    "The best way out is always through". Robert Frost







  10. #30
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    Thanks for the links guys! I can now send the links to someone I know who has a wife with MS. The video works for me. I loved seeing this again on the 23rd and completely agree with your thoughts. Someone who watched the documentary with me commented that they were amazed he had the footage of his fall on the beach and that the person who filmed it was smart enough to catch it and keep filming it. I see that Jason posted some youtube videos of himself on the blog before his MS progressed which were interesting to watch but also hard to watch because you know he will end up in a wheelchair eventually.

    You're welcome agate! My pleasure.
    Last edited by funnylegs4; 06-30-2014 at 09:26 PM.
    Mild Spastic Diplegia Cerebral Palsy and bad proprioception.
    My website for my original short films! http://cripvideoproductions.com/cripsnotcreeps.php

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