((((((Donna, Alex, & funnylegs4)))))) ~
Thank you so much for your support. Donna ~ what bags are you washing and reusing for Nick?
Well, guess what did not arrive today?
If you guessed respiratory supplies, you win!
Not even Jon's colostomy bags and drainage bags.
Nothing. Zip. Zed. Zilch. Nada.
Did anyone call me today with a heads up that the supplies weren't going to be delivered? Did my contact person at the colo/drainbag supplier call? Did the liaison call? Did the Referrals gal at the doctor's office call?
If your answer is, no, then you win again, and you should consider playing the Lottery.
How do you think that I reacted, when I opened the front door at 6 p.m. and saw an empty porch?
a. Growled, snarled, cursed under my breath, since Jim is sleeping.
b. Felt my blood pressure rise.
c. Fisted my hands and grit my teeth.
d. Shook my head and mumbled, "I can't believe this."
e. All of the above.
If you answered, e, then you are on a winning streak and should head straight for Vegas.
Because I foolishly trusted all three of these people to work this out so that Jon's supplies were delivered today, I didn't call any of them to follow up. I actually believed that they understood how fed up I am with all of this nonsense and stressed over Jon not having the supplies he needs. When they told me what they were doing yesterday, I thought we were all on the same page, and that they would get this done.
Guess what I'll be doing tomorrow morning?
If you guessed, calling all 3 of these people, and trying to keep my fury under wraps while doing so, then you receive the Grand Prize!
And that's exactly how I want to spend the morning, which is generally the time when Jim, Jon, and I are together and relatively awake. Especially tomorrow, since it is Jim's birthday. Yes, let's see if we can have the dagnnabit System spoil another special day for our family. Grrrr ... I even managed to sneak in a surprise for Jim, which is hard to do when you are together 24 hours a day and use the same computer!I just wanted it to be a quiet, peaceful day. Now this ... this ongoing issue that just won't get resolved!
Oh ~ and just to keep it fun and interesting ~ we had a power outage today! While Jim and I were cooking brunch. Jon's bed deflates instantly. So we left our half cooked meal on the cold stove, and Jim began the process to set up the generator. By the time he removed the screen to Jon's window, the power returned.
Now, call me technologically deficient, but after 3 forced outages to update our system, I don't think this should be happening.
But then depriving a palliative care patient vitally needed supplies to save him from drowning in his own secretions shouldn't be happening either.
It's clear to me now that we are going to have to purchase Jon's respiratory supplies to have on hand to cover these kinds of transitions and denials of service in the future. And I see more of this in the future. We are going in the wrong direction. I don't know whether this is the fault of how the Affordable Care Act was written, or if it is a knee jerk reaction to the ACA by the medical community. Regardless, it doesn't bode well for any of us right now.
I will awaken tomorrow to fight another day. And I will make certain that our celebration for Jim is not disrupted. How I'll do that, well ... I don't know. If I'm on the phone, and then the phone rings with return calls, and back and forth for hours ... we'll just have to do the best we can with what we've got and make it a party. The surprise will be a surprise, no matter the outside influences of the moment. We grab it when we can ~ the joy of life.
Stay tuned, my friends ~ it ain't over yet!
Love & Light,
Rose