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Thread: My son is detected with Landau Kleffner Syndrome- please help me out.

  1. #1

    Default My son is detected with Landau Kleffner Syndrome- please help me out.

    Dear All,

    My 5 &1/2 year old little son is recently been detected with very rare disorder called "Auditory Agnotia" caused due to Landau Kleffner Syndrome.
    Before 25 days, he was absolutely normal and now, he has lost his speech and hearing/understanding/comprehension ability. my entire family is collapsed and is in trauma. presently, he is on Steroids medication since 10 days, though no much improvement noticed.
    Please help me out.

  2. #2
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    I found a doctor with the Mayo Clinic, who knows about Landau Kleffner Syndrome. She is Katherine C. Nickels, M.D.
    Here are some links to The Mayo Clinic and to Doctor Katherine C. Nickels.
    http://search2.mayoclinic.com/search...put=xml_no_dtd

    http://www.vitals.com/doctors/Dr_Kat...ickels/profile

    http://www.vitals.com/doctors/Dr_Kat..._Nickels/video
    Last edited by linniec; 12-17-2013 at 04:41 AM.

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    Quote Originally Posted by linniec View Post
    This quote is hidden because you are ignoring this member. Show Quote
    I found a doctor with the Mayo Clinic, who knows about Landau Kleffner Syndrome. She is Katherine C. Nickels, M.D.
    Here are some links to The Mayo Clinic and to Doctor Katherine C. Nickels.
    http://search2.mayoclinic.com/search...put=xml_no_dtd

    http://www.vitals.com/doctors/Dr_Kat...ickels/profile

    http://www.vitals.com/doctors/Dr_Kat..._Nickels/video



    With some searching, I found the name of the Boston Children's Hospital. They might be a source
    of help. By the way, I found a recommendation to start speech therapy early -- if that would be suitable in your son's case.

  4. #4
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    ((((((prashant.naik))))))

    Welcome to BrainTalk.

    I'm so very sorry that your son has been diagnosed with LKS. I can imagine how devastated you and your family are.

    I'd like to invite you to join our Child Neurology forum, where you will meet other parents of children with a variety of neurological conditions. While we may not have experience with your son's specific condition, we have vast experience in many related aspects of your child's medical issues.

    Just click on the link below and start a new thread, introduce yourself and your son, and we will do our best to support you:

    http://www.braintalkcommunities.org/...hild-Neurology

    Our forums may be a bit slow in responses, because it is the holiday season. Just continue checking in with us, and feel free to join in any of our ongoing threads.

    Love & Light,

    Rose
    Mom to Jon, 48, (seizure disorder; Gtube; trache; colostomy; osteoporosis; hypothyroid; enlarged prostate; lymphedema, assorted mysteries) and Michael, 32, (intractable seizures; Gtube), who were born with an undiagnosed progressive neuromuscular disease and courageous spirits. Our Angel Michael received his wings in 2003 and now resides in Heaven. Our Angel Jon lives at home with me and Jim, the world's most wonderful dad.

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    Can you check out a differential diagnosis? There are other rare diseases with similar symptoms.

  6. #6

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    Dear prashant.naik ,
    I have not heard is this before ... My daughter also has so many rare diseases and syndromes .I can only help by keeping you in our prayers many, many prayers to you and your family that God will give you peace and love . Sometime our journeys in life don't take us where we want them too , but know God is always there for you . Love and prayers Sue

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