Kathleen saw her GI Dr. this week and we talked about her butt pain and she's had some burps that are very forceful. Butt pain could be the crohn's but not likely since I haven't seen any blood. She has a skin tag which could have been a fissure that is healing, or could be gas, this can cause some very sharp pains. I'm thinking maybe gas since she also has the terrible burps. He suggested trying a probiotic. We'll try this before he does any scopes to check into it further. I'm all for avoiding putting her under anesthesia for any scopes if we don't have to. He also did some blood work, checking her celiac numbers since they were high that last time he checked. I'm praying that they have normalized because I just don't know how much more careful I can be about the gluten.
We went back to the orthotist for her brace, and they made some adjustments again as per the physiatrist. She wore it for a little while(we're just working on the right one till she gets botox in her left ankle) and would not wear it again. She had lots of excuses that didn't make sense to me but in the end it didn't feel good on her leg. I had the pT at school look it over ahnd watch her walk in it and she wrote a very detailed not that I can bring to the orthotist. It states all the problems with it and says it really needs to be recasted and start fresh. So we do that this week hopefully but means at least 2 weeks before she can wear it again. Botox will be on Nov. 21st so I'm hoping that will help the left brace feel better.
In general she's feel pretty good most days. Some days she comes home a little early but Thursday and Friday she made it all day. We had a party for Kelly to celebrate passing the Bar and Kathleen had a ball!! She is a real party girl. She got people up dancing to Just Dance on the Wii.