Useful Websites (posted by David Hosobuchi, 10/2006--Updated 1/2018)

[agate]

The MS Association of America has published an informative MS Research Update (March 2013):

http://www.mymsaa.org/publications/m...ch-update-2013

[agate]

Here is a list of links to sources of adaptive clothing and accessories. Most offer both men's and women's clothes. Some will send a catalog on request. Most include shoes and intimate apparel but some don't.

IN THE U.S.:

Adaptations by Adrian
http://www.adaptationsbyadrian.com

Adaptive Clothing Showroom
http://www.adaptiveclothingshowroom.com/

Buck and Buck
http://www.buckandbuck.com

Clothing Solutions
http://www.clothingsolutions.com/

Edna B. Fashions
http://www.ednabfashions.com

Independent You
http://www.independentyou.com/catalog/

Wardrobe Wagon
http://www.wardrobewagon.com/

Wheelchair Jeans
http://www.wheelchairjeans.com

OUTSIDE U.S.:

Able 2 Wear
http://www.able2wear.com/

Crea Vie: Adapted
http://www.creavie.qc.ca/acreavie/index.html

Geri Fashions
http://www.gerifashions.com/store/

Silvert's
http://silverts.com/index.cfm

WheelieChix-Chic
http://www.wheeliechix-chic.com/

[agate]

The MSAA (Multiple Sclerosis Association of America) has put out a research update that gives a comprehensive rundown on existing and upcoming MS treatments:

http://mymsaa.org/publications/msresearch-update-2014/

[SalpalSally]

Thanks so much Joan for all of your work to bring us this!!!

And thanks Dave.

[agate]

Special thanks to Moderator 7 who helped me to fix up some links in this thread!

[Virginia]

This took a lot of work Agate. Thank you and David and Mod #7.

[agate]

Update on assistance programs for paying for MS drugs:

AMPYRA (Acorda Therapeutics)

Ampyra Patient Support Services

888-881-1918

AUBAGIO (Genzyme, A Sanofi Company)

MS One to One
1-855-676-6326

AVONEX (US and Canada) (Biogen Idec)

http://www.biogenidec.com/
1-800-456-2255

BETASERON (US and Canada) (Bayer Healthcare Pharmaceuticals, Inc.)
http://www.betaseron.com/financial-support
1-800-788-1467

BOTOX (Allergan, Inc.)
Botox Reimbursement Program
https://www.botoxone.com/PatientAssistanceProgram

COPAXONE (US and Canada) (Teva Neuroscience)
Shared Solutions
1-800-887-8100

EXTAVIA (US and Canada) (Novartis Pharmaceuticals Corp.)
Patient Assistance Now
1-800-245-5356

GILENYA (US) (Novartis Pharmaceuticals Corp.)
Patient Assistance Now
1-800-245-5356

H. P. ACTHAR (REPOSITORY CORTICOTROPIN) (US) (Questcor)
ACTHAR Support and Access Program (A.S.A.P.)
1-888-435-2284

PLEGRIDY (Biogen Idec)
http://www.biogenidec.com/
1-800-456-2255

REBIF (EMD Serono Inc. and Pfizer Inc.)
MS Lifelines
1-877-447-3243

TECFIDERA (US) (Biogen Idec)
MS Active Source
1-800-456-2255

TYSABRI (Biogen Idec)
MS Active Source
1-800-456-2255

More information can be found here.

[agate]

The MSAA (Multiple Sclerosis Association of America) has produced a 2015 summary of research in MS that could be very helpful and appears to be quite comprehensive.

You can see it here. These are the people who produced it:

Written and compiled by Stephen Krieger, MD
Includes material by Margaret M. McCormick, RN, BSN, MSCN and Diana Schneider, PhD
Reviewed by Jack Burks, MD | Edited by Susan Wells Courtney

[agate]

Some people have asked for this information to be permanently available for all of us here. In a thread JTwin is passing on information about resources for assistance with medical expenses, based on first-hand experience:

http://www.braintalkcommunities.org/...lp-some-of-you

[agate]

The MSAA (Multiple Sclerosis Association of America) maintains a list of prescription-assistance programs. It was apparently last updated June 2, 2016, and is a comprehensive and readable list:

http://mymsaa.org/ms-information/pre...ion-assistance

https://msfocus.org/Get-Help/Grants-Programs