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Useful Websites (posted by David Hosobuchi, 10/2006--Updated 1/2018)

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    #16
    This took a lot of work Agate. Thank you and David and Mod #7.
    Virginia

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      #17
      Update on assistance programs for paying for MS drugs:

      AMPYRA (Acorda Therapeutics)

      Only registered and activated users can see links., Click Here To Register...

      888-881-1918

      AUBAGIO (Genzyme, A Sanofi Company)

      Only registered and activated users can see links., Click Here To Register...
      1-855-676-6326

      AVONEX (US and Canada) (Biogen Idec)

      Only registered and activated users can see links., Click Here To Register...
      1-800-456-2255

      BETASERON (US and Canada) (Bayer Healthcare Pharmaceuticals, Inc.)
      Only registered and activated users can see links., Click Here To Register...
      1-800-788-1467

      BOTOX (Allergan, Inc.)
      Only registered and activated users can see links., Click Here To Register...
      Only registered and activated users can see links., Click Here To Register...

      COPAXONE (US and Canada) (Teva Neuroscience)
      Only registered and activated users can see links., Click Here To Register...
      1-800-887-8100

      EXTAVIA (US and Canada) (Novartis Pharmaceuticals Corp.)
      Only registered and activated users can see links., Click Here To Register...
      1-800-245-5356

      GILENYA (US) (Novartis Pharmaceuticals Corp.)
      Only registered and activated users can see links., Click Here To Register...
      1-800-245-5356

      H. P. ACTHAR (REPOSITORY CORTICOTROPIN) (US) (Questcor)
      Only registered and activated users can see links., Click Here To Register... (A.S.A.P.)
      1-888-435-2284

      PLEGRIDY (Biogen Idec)
      Only registered and activated users can see links., Click Here To Register...
      1-800-456-2255

      REBIF (EMD Serono Inc. and Pfizer Inc.)
      Only registered and activated users can see links., Click Here To Register...
      1-877-447-3243

      TECFIDERA (US) (Biogen Idec)
      Only registered and activated users can see links., Click Here To Register...
      1-800-456-2255

      TYSABRI (Biogen Idec)
      Only registered and activated users can see links., Click Here To Register...
      1-800-456-2255

      More information can be found Only registered and activated users can see links., Click Here To Register....







      Last edited by Moderator #7; 01-22-2018, 05:46 PM.
      SPMS diagnosed 1980. Avonex 2001-2004. Copaxone 2006-2009. Glatopa (glatiramer acetate = Copaxone) since December 2020.

      Comment


        #18
        The MSAA (Multiple Sclerosis Association of America) has produced a 2015 summary of research in MS that could be very helpful and appears to be quite comprehensive.

        You can see it Only registered and activated users can see links., Click Here To Register.... These are the people who produced it:

        Written and compiled by Stephen Krieger, MD
        Includes material by Margaret M. McCormick, RN, BSN, MSCN and Diana Schneider, PhD
        Reviewed by Jack Burks, MD | Edited by Susan Wells Courtney
        SPMS diagnosed 1980. Avonex 2001-2004. Copaxone 2006-2009. Glatopa (glatiramer acetate = Copaxone) since December 2020.

        Comment


          #19
          Links to several resources for assistance with medical expenses (thanks to JTwin)

          Some people have asked for this information to be permanently available for all of us here. In a thread JTwin is passing on information about resources for assistance with medical expenses, based on first-hand experience:

          Only registered and activated users can see links., Click Here To Register...
          SPMS diagnosed 1980. Avonex 2001-2004. Copaxone 2006-2009. Glatopa (glatiramer acetate = Copaxone) since December 2020.

          Comment


            #20
            The MSAA (Multiple Sclerosis Association of America) maintains a list of prescription-assistance programs. It was apparently last updated June 2, 2016, and is a comprehensive and readable list:

            Only registered and activated users can see links., Click Here To Register...

            Only registered and activated users can see links., Click Here To Register...
            Last edited by Moderator #7; 01-16-2018, 08:34 PM.
            SPMS diagnosed 1980. Avonex 2001-2004. Copaxone 2006-2009. Glatopa (glatiramer acetate = Copaxone) since December 2020.

            Comment


              #21
              Free MRIs available through MSAA again, while funds last

              The MS Association of America (MSAA) is reopening its program that enables people to get cranial MRIs "for MS diagnostic and follow-up exams until the limited funds are exhausted""

              MRI Access Fund Returns

              MSAA is thrilled to report we are currently processing applications for our longstanding and highly requested Only registered and activated users can see links., Click Here To Register.... Through recent support from Teva Neuroscience and Sanofi Genzyme, MSAA has reopened the program to provide cranial MRIs for MS diagnostic and follow-up exams until the limited funds are exhausted.

              It is important to note that MSAA has adjusted certain aspects of the program to balance the anticipated high demand from our clients. Under the current program’s guidelines, MSAA will process qualified applicants who are uninsured or unable to meet their current insurance deductible balance. Unfortunately, MSAA is unable to process co-insurance payments at this time.

              The MRI Access Fund application has been updated to reflect these changes and can be accessed at Only registered and activated users can see links., Click Here To Register... or by calling (800) 532-7667, ext. 120.

              Applications will be processed on a first-come, first-serve basis; no emergency situations apply; and specific documentation is required.

              MSAA is extremely pleased to resume this critically important service to the MS community and will continue to seek additional funding to help meet increasing client demand. If you have any questions, please call (800) 532-7667, ext. 120.

              --from the MSAA Motivator, Summer/Fall 2016 (p. 38)

              SPMS diagnosed 1980. Avonex 2001-2004. Copaxone 2006-2009. Glatopa (glatiramer acetate = Copaxone) since December 2020.

              Comment


                #22
                How about a Medical Cannabis Community with a forum just for MS?

                Only registered and activated users can see links., Click Here To Register...

                It's a new site, they need to get the ball rolling, so to speak. They are the first of their kind, (and the only one yet) like BrainTalk once was. Once that ball is rolling, it will snowball.
                Also like BrainTalk, this community is designed to cover as many disorders as patients call for. No one is turned aside.
                "The Most Determined Win!"

                ” If Windmills do indeed cause cancer, wouldn’t spinning them backwards cure it?” 🤪

                Comment


                  #23
                  Originally posted by David Hosobuchi View Post
                  How about a Medical Cannabis Community with a forum just for MS?

                  Only registered and activated users can see links., Click Here To Register...

                  It's a new site, they need to get the ball rolling, so to speak. They are the first of their kind, (and the only one yet) like BrainTalk once was. Once that ball is rolling, it will snowball.
                  Also like BrainTalk, this community is designed to cover as many disorders as patients call for. No one is turned aside.
                  Thank you David. Medical MJ just passed in Florida. I plan to learn about it.

                  Comment


                    #24
                    The "findaneurologist " link doesn't work.

                    Comment


                      #25
                      This one should work:

                      Only registered and activated users can see links., Click Here To Register...

                      Thank you for calling this problem to my attention! I'll see what I can do about getting the earlier post changed.
                      Last edited by Moderator #7; 09-22-2017, 06:53 AM.
                      SPMS diagnosed 1980. Avonex 2001-2004. Copaxone 2006-2009. Glatopa (glatiramer acetate = Copaxone) since December 2020.

                      Comment


                        #26
                        The MSAA 2017 MS research update:

                        Only registered and activated users can see links., Click Here To Register...
                        SPMS diagnosed 1980. Avonex 2001-2004. Copaxone 2006-2009. Glatopa (glatiramer acetate = Copaxone) since December 2020.

                        Comment


                          #27
                          Tips on walkers from Mayo Clinic:

                          Only registered and activated users can see links., Click Here To Register...
                          SPMS diagnosed 1980. Avonex 2001-2004. Copaxone 2006-2009. Glatopa (glatiramer acetate = Copaxone) since December 2020.

                          Comment


                            #28
                            (from Neurology Now) 6 ways to afford medical equipment

                            A recent article in Neurology Now (October-November 2017) lists some ways to afford medical equipment:

                            Only registered and activated users can see links., Click Here To Register...
                            SPMS diagnosed 1980. Avonex 2001-2004. Copaxone 2006-2009. Glatopa (glatiramer acetate = Copaxone) since December 2020.

                            Comment


                              #29
                              Resource for homecare assistance through the MS Foundation

                              The MS Foundation has home care assistance, available to qualified applicants, as described in this notice:

                              Homecare Assistance Grants



                              MS Focus understands the daily needs and challenges that must be met by both those with MS and their caregivers. In order to meet these needs in the most timely and efficient way possible, our Homecare Assistance Grantconnects you to the best available local services. Should resources within your community not be available, direct support may be provided on a temporary basis.

                              Available Services include

                              ~Home Care - Personal hygiene services, light housekeeping, grocery shopping, meal preparation, and transportation to and from appointments are all services that can be provided for a limited time.

                              ~Therapy Visits - Based upon individual need, an appointment with an occupational, physical, or speech therapist can be arranged. Through education and training, these therapists can help to foster independence, self-esteem, and better quality of life for the person living with MS.

                              ~Respite Care - Respite allows primary caregivers the opportunity to tend to themselves, or other family business, with the assurance that their loved one is being cared for by a properly trained individual. This service is provided on a short-term basis for a scheduled period of time.

                              ~Coming Home - Returning home from a stay at the hospital can be a difficult time of transition. We offer a four-hour visit from an aide who will meet the patient at the hospital, provide transportation home, and then get the patient settled comfortably at home.



                              The application can be seen and printed here:

                              Only registered and activated users can see links., Click Here To Register...
                              Last edited by agate; 10-26-2017, 05:36 PM.
                              SPMS diagnosed 1980. Avonex 2001-2004. Copaxone 2006-2009. Glatopa (glatiramer acetate = Copaxone) since December 2020.

                              Comment


                                #30
                                Agate: my neuro said IVIG is a DMT. And Rituxan is a DMT.
                                Last edited by Sunshine; 01-20-2018, 12:26 PM.

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