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Thread: Useful Websites (posted by David Hosobuchi, 10/2006--Updated 1/2018)

  1. #21
    Distinguished Community Member agate's Avatar
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    Default Free MRIs available through MSAA again, while funds last

    The MS Association of America (MSAA) is reopening its program that enables people to get cranial MRIs "for MS diagnostic and follow-up exams until the limited funds are exhausted""

    MRI Access Fund Returns

    MSAA is thrilled to report we are currently processing applications for our longstanding and highly requested MRI Access Fund Program. Through recent support from Teva Neuroscience and Sanofi Genzyme, MSAA has reopened the program to provide cranial MRIs for MS diagnostic and follow-up exams until the limited funds are exhausted.

    It is important to note that MSAA has adjusted certain aspects of the program to balance the anticipated high demand from our clients. Under the current programís guidelines, MSAA will process qualified applicants who are uninsured or unable to meet their current insurance deductible balance. Unfortunately, MSAA is unable to process co-insurance payments at this time.

    The MRI Access Fund application has been updated to reflect these changes and can be accessed at mymsaa.org/mri or by calling (800) 532-7667, ext. 120.

    Applications will be processed on a first-come, first-serve basis; no emergency situations apply; and specific documentation is required.

    MSAA is extremely pleased to resume this critically important service to the MS community and will continue to seek additional funding to help meet increasing client demand. If you have any questions, please call (800) 532-7667, ext. 120.

    --from the MSAA Motivator, Summer/Fall 2016 (p. 38)

    MS diagnosed 1980. Avonex 2002-2005. Copaxone 6/07 - 5/10.
    Member of this MS board since 2001.

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  3. #22
    Administrator/Community Manager David Hosobuchi's Avatar
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    Default

    How about a Medical Cannabis Community with a forum just for MS?

    CannaTalks Multiple Sclerosis Forum

    It's a new site, they need to get the ball rolling, so to speak. They are the first of their kind, (and the only one yet) like BrainTalk once was. Once that ball is rolling, it will snowball.
    Also like BrainTalk, this community is designed to cover as many disorders as patients call for. No one is turned aside.
    David Hosobuchi
    Administrator/Community Manager
    BrainTalk Communities Inc.

    "It's All in Your Head!- Because that's where your brain is silly!"


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  5. #23
    Distinguished Community Member Sunshine's Avatar
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    Default

    Quote Originally Posted by David Hosobuchi View Post
    This quote is hidden because you are ignoring this member. Show Quote
    How about a Medical Cannabis Community with a forum just for MS?

    CannaTalks Multiple Sclerosis Forum

    It's a new site, they need to get the ball rolling, so to speak. They are the first of their kind, (and the only one yet) like BrainTalk once was. Once that ball is rolling, it will snowball.
    Also like BrainTalk, this community is designed to cover as many disorders as patients call for. No one is turned aside.
    Thank you David. Medical MJ just passed in Florida. I plan to learn about it.

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  7. #24

    Default

    The "findaneurologist " link doesn't work.

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  9. #25
    Distinguished Community Member agate's Avatar
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    Default

    This one should work:

    http://patients.aan.com/findaneurologist/

    Thank you for calling this problem to my attention! I'll see what I can do about getting the earlier post changed.
    Last edited by Moderator #7; 09-22-2017 at 06:53 AM.
    MS diagnosed 1980. Avonex 2002-2005. Copaxone 6/07 - 5/10.
    Member of this MS board since 2001.

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  11. #26
    Distinguished Community Member agate's Avatar
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    The MSAA 2017 MS research update:

    http://mymsaa.org/publications/msres.../#Experimental
    MS diagnosed 1980. Avonex 2002-2005. Copaxone 6/07 - 5/10.
    Member of this MS board since 2001.

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  13. #27
    Distinguished Community Member agate's Avatar
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    Default

    Tips on walkers from Mayo Clinic:

    http://www.mayoclinic.org/healthy-li...r/sls-20076469
    MS diagnosed 1980. Avonex 2002-2005. Copaxone 6/07 - 5/10.
    Member of this MS board since 2001.

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  15. #28
    Distinguished Community Member agate's Avatar
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    Default (from Neurology Now) 6 ways to afford medical equipment

    A recent article in Neurology Now (October-November 2017) lists some ways to afford medical equipment:

    http://journals.lww.com/neurologynow...ipment.10.aspx
    MS diagnosed 1980. Avonex 2002-2005. Copaxone 6/07 - 5/10.
    Member of this MS board since 2001.

  16. #29
    Distinguished Community Member agate's Avatar
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    Thumbs up Resource for homecare assistance through the MS Foundation

    The MS Foundation has home care assistance, available to qualified applicants, as described in this notice:

    Homecare Assistance Grants



    MS Focus understands the daily needs and challenges that must be met by both those with MS and their caregivers. In order to meet these needs in the most timely and efficient way possible, our Homecare Assistance Grantconnects you to the best available local services. Should resources within your community not be available, direct support may be provided on a temporary basis.

    Available Services include

    ~Home Care - Personal hygiene services, light housekeeping, grocery shopping, meal preparation, and transportation to and from appointments are all services that can be provided for a limited time.

    ~Therapy Visits - Based upon individual need, an appointment with an occupational, physical, or speech therapist can be arranged. Through education and training, these therapists can help to foster independence, self-esteem, and better quality of life for the person living with MS.

    ~Respite Care - Respite allows primary caregivers the opportunity to tend to themselves, or other family business, with the assurance that their loved one is being cared for by a properly trained individual. This service is provided on a short-term basis for a scheduled period of time.

    ~Coming Home - Returning home from a stay at the hospital can be a difficult time of transition. We offer a four-hour visit from an aide who will meet the patient at the hospital, provide transportation home, and then get the patient settled comfortably at home.



    The application can be seen and printed here:

    https://msfocus.org/MultipleSclerosi...cation-All.pdf
    Last edited by agate; 10-26-2017 at 05:36 PM.
    MS diagnosed 1980. Avonex 2002-2005. Copaxone 6/07 - 5/10.
    Member of this MS board since 2001.

  17. #30
    Distinguished Community Member Sunshine's Avatar
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    Agate: my neuro said IVIG is a DMT. And Rituxan is a DMT.
    Last edited by Sunshine; 01-20-2018 at 01:26 PM.

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