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Thread: Useful Websites (posted by David Hosobuchi, 10/06)

  1. #11
    Distinguished Community Member agate's Avatar
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    The MS Foundation offers a grant for temporary short-term home care assistance. More information and an application can be found here.
    MS diagnosed 1980. Avonex 2002-2005. Copaxone 6/07 - 5/10.
    Member of this MS board since 2001.

  2. #12
    Distinguished Community Member agate's Avatar
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    The MS Discovery Forum is a resource sponsored by the Accelerated Cure Project in conjunction with Massachusetts General Hospital:

    http://www.msdiscovery.org/

    If you click on "Drug Development Pipeline" on the Website, you'll find a very comprehensive summary of information about MS drugs.

  3. #13
    Distinguished Community Member agate's Avatar
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    The MS Association of America has published an informative MS Research Update (March 2013):

    http://www.mymsaa.org/publications/m...ch-update-2013
    MS diagnosed 1980. Avonex 2002-2005. Copaxone 6/07 - 5/10.
    Member of this MS board since 2001.

  4. #14
    Distinguished Community Member agate's Avatar
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    Default Adaptive clothing resources

    Here is a list of links to sources of adaptive clothing and accessories. Most offer both men's and women's clothes. Some will send a catalog on request. Most include shoes and intimate apparel but some don't.

    IN THE U.S.:

    Adaptations by Adrian
    http://www.adaptationsbyadrian.com

    Adaptive Clothing Showroom
    http://www.adaptiveclothingshowroom.com/

    Buck and Buck
    http://www.buckandbuck.com

    Clothing Solutions
    http://www.clothingsolutions.com/

    Easy Access Clothing
    http://easyaccessclothing.com/

    Edna B. Fashions
    http://www.ednabfashions.com

    Independent You
    http://www.independentyou.com/catalog/

    Legawear
    http://www.Legawear.com

    Simple Closures
    http://www.Simpleclosures.com

    Specially for You, Inc.
    http://www.speciallyforyou.net/

    Wardrobe Wagon
    http://www.wardrobewagon.com/

    Wheelchair Jeans
    http://www.wheelchairjeans.com

    OUTSIDE U.S.:

    Able 2 Wear
    http://www.able2wear.com/

    Crea Vie: Adapted
    http://www.creavie.qc.ca/acreavie/index.html

    Geri Fashions
    http://www.gerifashions.com/store/

    I Z Adaptive
    http://www.izadaptive.com

    Silvert's
    http://silverts.com/index.cfm

    WheelieChix-Chic
    http://www.wheeliechix-chic.com/

    Xeni Collection
    http://www.Xenicollection.com
    Last edited by Moderator #7; 12-28-2014 at 03:07 PM.
    MS diagnosed 1980. Avonex 2002-2005. Copaxone 6/07 - 5/10.
    Member of this MS board since 2001.

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    Distinguished Community Member agate's Avatar
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    Default (MSAA) 2014 MS research update

    The MSAA (Multiple Sclerosis Association of America) has put out a research update that gives a comprehensive rundown on existing and upcoming MS treatments:

    http://mymsaa.org/publications/msresearch-update-2014/
    MS diagnosed 1980. Avonex 2002-2005. Copaxone 6/07 - 5/10.
    Member of this MS board since 2001.

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  7. #16
    Distinguished Community Member agate's Avatar
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    Websites about the newer FDA-approved MS drugs on the scene:

    AUBAGIO (teriflunomide)


    http://www.nationalmssociety.org/Tre...ations/Aubagio

    LEMTRADA (Campath, alemtuzumab)

    http://www.nationalmssociety.org/Tre...tions/Lemtrada

    https://www.lemtrada.com/patient

    PLEGRIDY (pegylated interferon beta-1a)

    https://www.plegridy.com/

    TECFIDERA (dimethyl fumarate, BG-12, Fumaderm)

    http://www.tecfidera.com/

    http://www.nationalmssociety.org/Tre...idera%E2%84%A2





    Last edited by agate; 12-28-2014 at 02:22 PM.
    MS diagnosed 1980. Avonex 2002-2005. Copaxone 6/07 - 5/10.
    Member of this MS board since 2001.

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    Thanks so much Joan for all of your work to bring us this!!!

    And thanks Dave.
    Love, Sally


    "The best way out is always through". Robert Frost







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  11. #18
    Distinguished Community Member agate's Avatar
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    Special thanks to Moderator 7 who helped me to fix up some links in this thread!
    MS diagnosed 1980. Avonex 2002-2005. Copaxone 6/07 - 5/10.
    Member of this MS board since 2001.

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  13. #19
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    This took a lot of work Agate. Thank you and David and Mod #7.
    Virginia

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  15. #20
    Distinguished Community Member agate's Avatar
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    Update on assistance programs for paying for MS drugs:

    AMPYRA (Acorda Therapeutics)

    Ampyra Patient Support Services

    888-881-1918

    AUBAGIO (Genzyme, A Sanofi Company)

    MS One to One
    1-855-676-6326

    AVONEX (US and Canada) (Biogen Idec)

    http://www.biogenidec.com/
    1-800-456-2255

    BETASERON (US and Canada) (Bayer Healthcare Pharmaceuticals, Inc.)
    http://www.betaseron.com/financial-support
    1-800-788-1467

    BOTOX (Allergan, Inc.)
    Botox Reimbursement Program

    COPAXONE (US and Canada) (Teva Neuroscience)
    Shared Solutions
    1-800-887-8100

    EXTAVIA (US and Canada) (Novartis Pharmaceuticals Corp.)
    Patient Assistance Now
    1-800-245-5356

    GILENYA (US) (Novartis Pharmaceuticals Corp.)
    Patient Assistance Now
    1-800-245-5356

    H. P. ACTHAR (REPOSITORY CORTICOTROPIN) (US) (Questcor)
    ACTHAR Support and Access Program (A.S.A.P.)
    1-888-435-2284

    PLEGRIDY (Biogen Idec)
    http://www.biogenidec.com/
    1-800-456-2255

    REBIF (EMD Serono Inc. and Pfizer Inc.)
    MS Lifelines
    1-877-447-3243

    TECFIDERA (US) (Biogen Idec)
    MS Active Source
    1-800-456-2255

    TYSABRI (Biogen Idec)
    MS Active Source
    1-800-456-2255

    More information can be found here.







    MS diagnosed 1980. Avonex 2002-2005. Copaxone 6/07 - 5/10.
    Member of this MS board since 2001.

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