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Thread: Anyone know how to donate your brain for epilepsy research?

  1. #1
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    Default Anyone know how to donate your brain for epilepsy research?

    I decided to start looking into getting my ducks in a row to prepare to make anatomical donations at the end of my life. No impending doom, just lining up my ducks!

    First is donation of any and everything that is transplantable. Secondly, is the donation of my very seizure rich brain to help with research into finding new treatments and a cure for epilepsy.

    Hoping to find that I will be able to do both.

    Anyone know ay information that would be helpful?

    Thanks!

    Sissylou

  2. #2
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    Hi Sissylou,

    Welcome to the forum! My best advice to you is to check with your neurologist to find out about donating your brain for research. I have already signed papers to donate
    organs. Whatever you do be sure to put it in your will so everyone knows what you want done. Here's wishing you well and May God Bless You!

    Sue

  3. #3
    Distinguished Community Member Earth Mother 2 Angels's Avatar
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    ((((((Sissylou))))))

    Welcome to BrainTalk! Glad you found us!

    I'm so sorry that you have a "seizure rich" brain. Not the kind of wealth anyone wants to accumulate. We're here to listen and support, if you want to share your story.

    I Googled "brain donation for epilepsy research" and found these:

    United States

    Harvard Brain Tissue Resource Center:
    http://www.brainbank.mclean.org

    New York Brain Bank at Columbia University:
    http://www.nybb.hs.columbia.edu/

    NICHD Brain and Tissue Bank:
    http://medschool.umaryland.edu/BTBank/Family/index.html

    International

    Canadian Brain Tissue Bank:
    http://tinyurl.com/6pmwgqd

    Australian Brain Bank Network:
    http://www.nnf.com.au/platforms/abbn/

    Brain Donation Epilepsy Society/UK:
    http://www.epilepsysociety.org.uk/br...n#.Uhf4G7TIZmA

    Bless you in this decision to help others.

    Love & Light,

    Rose
    Mom to Jon, 48, (seizure disorder; Gtube; trache; colostomy; osteoporosis; hypothyroid; enlarged prostate; lymphedema, assorted mysteries) and Michael, 32, (intractable seizures; Gtube), who were born with an undiagnosed progressive neuromuscular disease and courageous spirits. Our Angel Michael received his wings in 2003 and now resides in Heaven. Our Angel Jon lives at home with me and Jim, the world's most wonderful dad.

  4. #4
    Distinguished Community Member jingle's Avatar
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    "My" university hospital wants mine -- they are getting it. They are getting all of me. I signed their paperwork and my attorney put it in my will.

  5. #5
    Distinguished Community Member howdydave's Avatar
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    Howdy Sissylou!

    I second Porkette's suggestion...
    Talk to your neurologist!
    Dave
    Ego sum quis ego sum quod ut est quicumque ego sum - Popeye
    www.howdydave.com

  6. #6

    Default Organs donation

    Hello porkette, i just read your replay and i am surprised for what you done, its very usefull move you made! You will probably save somones life! God bless yoU!

  7. The following user says "thanks"


  8. #7
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    Hi Goves,

    Thank you for your kind words! I want to donate my organs because I saw a young man say my Uncle life when he had to have a heart transplant. I figured why not save someone
    else or help them out because when I pass away most of the organs are just destroyed and I would rather help save a life. Take care and May God Bless You!

    Sue

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