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Thread: A Beautiful Article - MUST READ!

  1. #1
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    Default A Beautiful Article - MUST READ!

    I know you all will identify so strongly with this - I did!

    http://bloom-parentingkidswithdisabi...s-measure.html

    PS: This is a terrific blog in general - highly recommended. xo
    Donna, Mum to Natalie (22), ablebodied, kind and beautiful and Nicholas(26), severe CP, non-verbal, tube fed, multiple surgeries, chronic pain, happy kid except when the Liverpool football club or the Ottawa Senators Hockey Team are losing!
    Check out my blog: http://www.donnathomson.com


  2. #2
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    Eric and Segev are on my Ohtahara Website and have been for several years. Super nice guy and an absolutely devoted dad.
    grandmother of Tyler (22): Ohtahara Syndrome/SCN2a gene mutation, cortically visually impaired, quadriplegic, severely developmentally delayed, no speech, severe intractable seizures, frontal and temporal lobe atrophy, progressive scoliosis/kyphosis, chronic kidney stones & UTI's, gastroparesis, 100% tube fed, autonomic dysreflexia, but what a precious gift from God. "Lord, grant me the serenity to accept the things I cannot change."

  3. #3
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    Great writer too! xo
    Donna, Mum to Natalie (22), ablebodied, kind and beautiful and Nicholas(26), severe CP, non-verbal, tube fed, multiple surgeries, chronic pain, happy kid except when the Liverpool football club or the Ottawa Senators Hockey Team are losing!
    Check out my blog: http://www.donnathomson.com


  4. #4
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    ((((((Donna & Tamie))))))

    Yes, Eric is an excellent writer. What he shares in this article is similar to what I said on the other post about sacrifice, which is that caring for my sons is not a sacrifice, but a joy, and that I have gained far more from my children than I would have without them.

    "You have no life." That one always gets me (and Jim). Our answer: "Our children are our life."

    By the way, is Eric a single father? There was no mention of Segev's mom.

    Thanks for sharing his article with us, Donna.

    Love & Light,

    Rose
    Mom to Jon, 48, (seizure disorder; Gtube; trache; colostomy; osteoporosis; hypothyroid; enlarged prostate; lymphedema, assorted mysteries) and Michael, 32, (intractable seizures; Gtube), who were born with an undiagnosed progressive neuromuscular disease and courageous spirits. Our Angel Michael received his wings in 2003 and now resides in Heaven. Our Angel Jon lives at home with me and Jim, the world's most wonderful dad.

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