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Thread: OT June Chit Chat

  1. #1
    Distinguished Community Member Pegakafarmgirl's Avatar
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    Default OT June Chit Chat

    Hello out there,,how's it going..

    Been dealing with floods, in Iowa as you all probally heard,, we need drying time,,so far we re doing okay,,,we are much better off then southern Iowa,,

    We shoed horses last night,,put PF Flyers on them,,lol, our family reunion is the 15th of June,,our son is putting this on, down at the farm,, we are helping with this, since he is alone {divorce},,

    Garden is just okay,,jury is still out,, since we had all that rain, to see what damage {plants drowning} is done,,

    I am doing okay,it is in the dormant stage right now,,not good not to bad,,,{ you understand,,right ?}..

    better go, I see a rhubarb pie is calling me to make,,probally something to do with rhubarb in my sink, hey that's a country song,,"rhubarb in my sink"..hahahaha !
    " Don't outsmart your common sense"

    Peg

  2. #2
    Distinguished Community Member SalpalSally's Avatar
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    Default

    Rhubarb and June. What memories that brings back.
    How about, 5 yrs old, in Grandma's garden, munching
    on raw rhubarb...almost as bad as sucking on a lemon.

    MS is on hold, but doesn't like the summer heat and is
    finding little cruel ways to tell me that. Grrrrrrrrrrrrrrr

    Hope you all are well and in some way, happy. (((Hugs)))
    Love, Sally


    "The best way out is always through". Robert Frost







  3. #3
    Distinguished Community Member nuthatch's Avatar
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    Hot here in California, supposed to hit 101 again today, then cool down to the 80s tomorrow.

    MS is not bothering me half as much as the infection in my foot and severe allergic reaction to ??? which has caused me to break out in severe itching, oozing sores all over my body, even my ears and scalp! I've had it for more than a month now, and have been given the runaround by doctors for weeks. Finally starting to take this seriously! I'm on my second short course of prednisone for the itch and second round of antibiotics (the first I couldn't keep down!). Biopsy and culture results pending, but I'm just plain scared at this point. This sucks!
    Interesting how much less spastic I am while on prednisone. Forgot what it feels like.

    Sorry for the whine.

  4. #4
    Distinguished Community Member agate's Avatar
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    Joan/nuthatch, that sounds truly miserable! I'm glad your doctors have started taking this seriously--it's about time.

    I hope they'll come up with some good answers soon.
    MS diagnosed 1980. Avonex 2002-2005. Copaxone 6/07 - 5/10.
    Member of this MS board since 2001.

  5. #5
    Distinguished Community Member Jeanie Z's Avatar
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    Smile

    :) Hi everyone. Joan I hope your doctor finds a fix for your rash, it sounds bad. Gary did you misplace your camera? I hope you are fully settled into the new house.

    The cough I've had for about 9 months is better. The ENT sent me 2 RX's and my cough is almost gone. A 6 day steroid taper of Methylprednisolone 4 mg and Amox-Clav 875 mg twice a day for 21 days. I have 10 days of that to go.

    I did tell David's sister that I could NOT afford to give the RV away as I need the money. She said she was not interested in paying for it. David's other sister said that Frani really wanted her son to have it so he could fix it up and sell it. Frani applied for the VA death benefit and had me send her a death certificate to do it. I paid for the whole funeral on my Visa and they have not offered any money to me.

    Bill (83) the friend who took care of Mother has been in the hospital and in rehab for almost a week. I wish I was up there to see him. Please say a prayer for him. (And for me.)

    I am sleeping in almost everyday and many days not getting out of my pajamas. I gave one neighbor David's huge motor lift, his huge 220 air compressor with 100 ft of pressurized hose, two car ramps, about 6 jack stands and two rolling jacks. My sons have not sorted the tools in the utility building and it is full. I do not want to have a yard sale as I do not want the gangs to find out I am here alone.

    I keep my house at 74 and at times that feels cold to me. I sleep with two blankets on the bed.

    I figured out a way to mop the floors in my scooter, so my son does not have to do that every week. I still need help changing the bed linens and mowing the yard. He is also running the
    RV around the block to keep it all working until we find a buyer.

    ((((Sally)))) and (((( everyone else)))). You are all in my prayers. Jeanie :)

  6. #6
    Distinguished Community Member Frog42's Avatar
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    Jeanie, that is so sad that David's sisters wanted you to just hand over anything they wanted. I don't think that's what David would have expected. They could at least have offered to help in some way. They sound very selfish.

    I hope things start looking up for you soon.
    Last edited by Frog42; 06-03-2013 at 12:03 PM.


    Whatever happens around you, don't take it personally. Nothing other people do is because of you. It is because of themselves. -- Miguel Ruiz

  7. #7
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    Default Still Not All Here

    I've been trying to recover from the set back on Mother's Day. I still don't know why I collapsed unless it was from the infection. I'm resting a lot but it doesn't seem to be restoring me in any way. I still break down and weep whenever I have to tell someone who doesn't know that Joe has passed away. I wrote a lot of notes to let old friends and relatives who are in other states know. He had a lot of friends from over the years since he was a football coach and teacher as well as an administrator and some I haven't written or called yet.

    I quess the fact that I have MS or MG is causing me to be more emotional. That's another thing I have to get an answer for. Every time I have to give my history to a doctor they reply "You're the first patient I've had with both MS and MG". I have made an appointment with a doctor(neuro) here in town who claims to be interested in MG. I hope so as it is difficult to find one who is, as it is a rare disease, so no specialist here in the south. I would have to travel to Mayo Clinic in MN to find a specialist.

    My prayers go out to everyone else who are going thru so much at this time. I have received many cards. I am still working on the arrangements for the memorial service which will be in July at our church. One granddaughter will sing, another grandson will play Joe's acoustic guitar which I have given to him and either our oldest son or his son will have a remembrance reading to honor Joe's memory. It will take me a long time to take care of all the legal paperwork which has to be finalized.

    Just taking one day at a time....

    Blessings,
    Gabriella
    Progressive/Relapsing MS, Myasthenia Gravis, Spinal Stenosis, Degenerative Disc Disease, Diabetes, Hypertension, Hashimoto's Thyroiditis
    Advocate for ADA, Artist's Community for Change, ADAPT, Universal Living in Place, HopeKeepers, Complementary and Alternative Medicine

    "Life is mostly froth and bubble, two things stand like stone. Kindness in another's trouble, Courage in your own"........Adam Lindsay Gordon

  8. #8
    Distinguished Community Member Jeanie Z's Avatar
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    :) Hi everyone. Gabriella I understand about letting people know about your husband's death. I put off using the phone. I have so many mixed feelings right now. I am sad, lonely, scared, worried and not very functional. I am just doing things I have to do. I have no idea who all I have talked to and who I haven't.

    I finally got the check that closed my Mother's last account. However I'm not sure what Merrill Lynch did but it is about 700 less that I had expected. Each of us will get $1265.00. It only took about twenty-five phone calls, several letters with copies of the will, etc to the circuit court. They sent me a letter signed by a judge that ML could issue me a check. But no ML has had the letter for 6 weeks in their legal department. All the paperwork, calls, etc. are time consuming, cost money and are annoying.

    I am going to call this week and make an appointment with the lawyer to redo my will so it will be as simple for my sons as I can make it. I have already put their names on all my bank accounts and my safety deposit box and shown them where to find the key. I am an organ and eye donor but I will have a new living will made too.

    We went from a drought to now being flooded. Many farmers horses and cows are standing in water. One of the back gutters has been pouring water down by the septic tank and I might have to have my son pile up dirt or dig a trench to keep it away from that. The almost constant drizzle is depressing. I am ready to see the sun shine. Please keep me in your prayers and you are all in mine. Jeanie :)

  9. #9
    Distinguished Community Member renee's Avatar
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    Jeanie- Did ML include a breakdown of fees, if any, they might have added to disperse your mom's account?
    It can be as bad as charging for kleenex in a hospital.
    Take care.

  10. #10
    Distinguished Community Member Cherie's Avatar
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    I'm back from the Consortium of MS Centers annual meeting in Orlando. LOTS of information on new stuff coming down the pike and reassessment of old therapies. They are now saying that newly diagnosed folks should probably start on Tysabri or Tecfidera and when stable for 3-5 years "graduate" to one of the injectables. There are new clinical trials gearing up for SPMS using our own blood cells to create a special infusion that will reboot our immune systems. There are 23 trial sites recruiting in the US for that . Message me if you want information.

    I seem to have pretty much fully recovered from the relapse I had in early March. Really took me off guard as I was still in the honeymoon phase of no new symptoms and more energy since the 25 months of high dose Cytoxan therapy. I may need to seriously consider going back on a DMT to forestall any more relapses in the future. HOWEVER...I am now able to walk a mile or more a day for the first time in years!

    Still catching up with work at David's office since getting back on Tuesday afternoon from FL. Considering taking a nursing job that has been offered to me. Will talk to HR about that this week sometime. I think it is a given that I no longer need the gift of SSDI and can come off it in the very near future.

    We celebrated our 38th wedding anniversary at Epcot last Saturday, did Hollywood studios and Animal Kingdom Sunday and Typhoon Lagoon Monday before flying home Tuesday.

    For those that missed it...we lost Mo-Kitty (16) 4 days before going on vacation. Hard death here at home because the vet could not see her till late the next day. She had been going down hill for over a year and the last 10 days of her life were filled with diarrhea (bloody) and no eating and loss of most of her body weight and the last day, seizures and we are heart broken. It is so hard for me now to fix a meal without an animal standing guard. We have not been without a furry family member for more than 20 years so things are lonely but I think we need to do this, grieve and get through it because , at this stage of our lives, a pet is not in the picture as far as our lifestyle changes are concerned.

    Blessings to Gabriella and Jeanie as you learn to live without your loved ones.

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