Hi , I am GING from another forum,
my grand niece ( 8months) is to have this surgery on June 18th, I as wondering if anyone in this forum has any information on this . I do know she has a special helmet that she will have to wear for a LoNG while. The surgeon explained some of the things that could go wrong, but they down play it so much.
I do know they have to remove her entire forehead and cut away quite a bit of bone...if any of you can tell me the best way to give support to my little sweet family, please do...I don't live where they are but would try and go if I could. I just want to gather information in the real world and not just from google. I wasn't even sure where to post this., thanks in advance for any help .
GING
my grand niece ( 8months) is to have this surgery on June 18th, I as wondering if anyone in this forum has any information on this . I do know she has a special helmet that she will have to wear for a LoNG while. The surgeon explained some of the things that could go wrong, but they down play it so much.
I do know they have to remove her entire forehead and cut away quite a bit of bone...if any of you can tell me the best way to give support to my little sweet family, please do...I don't live where they are but would try and go if I could. I just want to gather information in the real world and not just from google. I wasn't even sure where to post this., thanks in advance for any help .
GING
Comment