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Thread: Approved research study about people with Multiple Sclerosis

  1. #1
    Administrator/SYSOP Mike Weins's Avatar
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    Thumbs up Approved research study about people with Multiple Sclerosis

    Howdy folks

    I am approving a study being conducted by HMorris about "The effectiveness of an online Mindfulness Based Cognitive Therapy intervention programme at improving well-being in people with Multiple Sclerosis". I think this is an excellent study and hope that at least a few of our members with MS can participate.

    HMorris will reply to this thread with more information and a link. If you have any questions please don't hesitate to ask, if they are general questions about the study please ask them in this thread so others that might have similar questions can see the answer(s).
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  2. #2

    Default Mindfulness in Action for Multiple Sclerosis

    As part of a team of researchers at the National University of Ireland, Galway I am investigating the benefits of a mindfulness based programme for people with Multiple Sclerosis. We are inviting people complete a free 4 week online programme. The programme consists of 12 sessions accessed over this time (3 per week) and each session takes about 30-40 minutes to complete.

    In order to test the effectiveness of the programme we are asking people to fill in a questionnaire first which will take about 10 minutes to complete (the link is below). Upon completion, you will then be randomly allocated to complete the programme straight away and or placed on a 4 month waiting list.

    This programme has produced benefits in people with other chronic conditions and we want to see if it can be as effective in people with Multiple Sclerosis. Having recently been diagnosed myself last year, and having tested it out myself I believe it will be and I hope people will experience the same benefits from completing the programme as I have. This study aims to investigate if this is the case.

    People who complete the programme will also be entered into a prize draw for a 50 Euro Amazon voucher (or currency equivalent).

    If you are over 18, have a probable or definite diagnosis of MS and wish to find out more please click the link below. Please read the information and if you are interested in taking part click the box to agree and click ‘continue’ to proceed to the questionnaire.
    Last edited by Mike Weins; 05-26-2013 at 12:17 PM. Reason: removed link because study is over should see results in Sept 2013

  3. #3
    Distinguished Community Member SalpalSally's Avatar
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    Default

    I would like to help, but it sounds too time consuming and tiring for me.
    I am older now, have had MS for over 40 years and am just too tired.
    One of the most serious symptoms of MS is debilitating fatigue.

    I do hope your research turns into a successful treatment for people
    with MS. It sounds interesting.
    Love, Sally


    "The best way out is always through". Robert Frost







  4. #4
    Distinguished Community Member agate's Avatar
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    I'm afraid I'm another one who would find this too tiring and time-consuming. Thank you for providing the opportunity--and others here may want to sign up for the project.
    MS diagnosed 1980. Avonex 2002-2005. Copaxone 6/07 - 5/10.
    Member of this MS board since 2001.

  5. #5
    Distinguished Community Member renee's Avatar
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    Default ?question?

    I am interested but would like first to know how rigid the session times are.

  6. #6

    Default

    Thank you all for the feedback.

    Each session consists of a PowerPoint presentation that is between 7 and 15 minutes long and a mediation exercise that is between 6 and 15 minutes long. Some of the sessions also include activities, both thinking and more practical exercises, that we encourage you to take part in in your own time. You can access the sessions as many times as you want and if you cant complete a session in one go, you can note where you got to and come back to it when you are able. Similarly, i understand that people are unlikely to access the sessions on the exact days proposed and this is fine, but hope that 3 new sessions will be accessed each week and prompts to complete the next session will be sent to this effect.

    I hope this information helps, please let me know if there is more you would like to know :-)

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