I was diagnosed several years ago with a CSF leak and at the beginning had double vision for a couple of months until the fluid build back up slightly and the brain pushed off of the nerve that was causing the double vision. Here is a question for anyone out there......Over the past couple of months I have had pain on the right side of my face and after many appointments ( dental and doctor ), a couple of antibiotics to rule out sinus infection and finally another MRI scan last Sunday to rule out a tumor, my doctor said that she thinks I have Trigeminal Neuralgia. I am absolutely convinced that I have leaked more fluid than normal, and that the brain is pushing on the Trigeminal Nerve causing this right sided face pain. I have a new doctor who is not really familiar with CSF leaks so for anyone out there....does this sound reasonable to determine that the lack of fluid causing the brain to sink and push on a nerve might cause this pain. I would hate to think on top of my CSF leak and all that goes with that, that I have something new as well. My doctor suggested some medication for pain, which I am not doing yet as I want to try doing bed rest again to try to replenish the fluid.
If anyone can weigh in on this to either help me dismiss this connection or agree with it, I would appreciate any help......Christa