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Thread: Tyler's birthday!

  1. #1
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    Default Tyler's birthday!

    Wow, hard to believe, but Tyler turned 18 today! What a milestone for him. We saw the attorney yesterday to get the paperwork started for conservatorship. This attorney is charging us $3500 which is a huge savings from the last one. Her first questions was if it was OK for Tyler to lose his ability to vote. Not exactly on the top of my concerns list, but I guess it would bug some people. We just want to know that Tyler is protected and we have access to his medical needs. The courts basically strips alway all of Tyler's basic constitutional rights and give them to us. What a strange world we live in.
    grandmother of Tyler (22): Ohtahara Syndrome/SCN2a gene mutation, cortically visually impaired, quadriplegic, severely developmentally delayed, no speech, severe intractable seizures, frontal and temporal lobe atrophy, progressive scoliosis/kyphosis, chronic kidney stones & UTI's, gastroparesis, 100% tube fed, autonomic dysreflexia, but what a precious gift from God. "Lord, grant me the serenity to accept the things I cannot change."

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    HAPPY BIRTHDAY TYLER!


    ((((((Tamie & Tyler))))))

    What a milestone for Tyler! Hope that he's well and enjoying his birthday.

    What prompted you to decide on conservatorship vs. legal guardian?

    Why does Tyler lose his right to vote? Is that part of being conserved?

    Indeed, we live in a strange world.

    I hope that all goes smoothly with the conservatorship, and that the paperwork isn't overwhelming.

    HAPPY BIRTHDAY TYLER!!

    Love & Light,

    Rose
    Mom to Jon, 48, (seizure disorder; Gtube; trache; colostomy; osteoporosis; hypothyroid; enlarged prostate; lymphedema, assorted mysteries) and Michael, 32, (intractable seizures; Gtube), who were born with an undiagnosed progressive neuromuscular disease and courageous spirits. Our Angel Michael received his wings in 2003 and now resides in Heaven. Our Angel Jon lives at home with me and Jim, the world's most wonderful dad.

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    Happy 18th birthday to Tyler and congratulations to you, Tamie for raising such a wonderful young man in such a loving family.
    Donna, Mum to Natalie (22), ablebodied, kind and beautiful and Nicholas(26), severe CP, non-verbal, tube fed, multiple surgeries, chronic pain, happy kid except when the Liverpool football club or the Ottawa Senators Hockey Team are losing!
    Check out my blog: http://www.donnathomson.com


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    Hi Rose,

    After researching conservatorship, I found that in California, guardianship and conservatorship of an adult is the same thing. The courts basically strip Tyler of all his rights (since Tyler does not have the mental capacity to make decisions on his own) and give them to us to deal with for him, that includes the right to vote (you have to be mentally able to understand the issues, or so they say, in order to vote). Since Tyler can't understand the issues, he's not able to vote on them. That really wasn't an issue for us. We were more concerned with the HIPPA laws that apply to all adults regardless of their mental capacity. Any doctor we take Tyler to can deny us access to his medical records, tests, etc. because he is legally an adult and the HIPPA laws apply to him. That is something we didn't want to deal with. At least this attorney is more reasonable and very knowledgeable about special needs legal issues. She deals a lot with the autism spectrum, is very compassionate and not out to gouge us. Nice for a change.
    grandmother of Tyler (22): Ohtahara Syndrome/SCN2a gene mutation, cortically visually impaired, quadriplegic, severely developmentally delayed, no speech, severe intractable seizures, frontal and temporal lobe atrophy, progressive scoliosis/kyphosis, chronic kidney stones & UTI's, gastroparesis, 100% tube fed, autonomic dysreflexia, but what a precious gift from God. "Lord, grant me the serenity to accept the things I cannot change."

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    ((((((Tamie))))))

    That's interesting to know about conservatorship and guardianship being the same thing. Do you have to report to the court monthly or maintain any sort of documentation about Tyler for the court?

    I understand that you weren't concerned about Tyler's voting rights. I was just curious whether conservatorship was the reason for his losing that right. I can see where it would be, since conservatorship generally occurs, when an individual is unable to make his/her own decisions/choices.

    When Jon turned 18, his life skills teacher registered him to vote. Jon has always been interested in politics, and I felt that he was able to decide at the very least on his choice for President and Governor. However, I figured that his comprehension, thus qualification, to vote would be questioned at the polls, and I never thought about an absentee ballot for him. So, he has never voted, but he always makes it clear to us who his candidate is in major elections. As far as our Propositions, I must admit that many times I don't understand some of them completely! And I'd venture to guess that's true of many people.

    I'm sure that this will be a relief for you, since you will never have to fear being questioned about your authority to act on Tyler's behalf.

    I'm so glad that you found a trustworthy attorney with a real understanding of special needs adults and their families.

    Please give Tyler an "adult" HUG from me and lots of wishes for a happy healthy birthday!

    Love & Light,

    Rose
    Mom to Jon, 48, (seizure disorder; Gtube; trache; colostomy; osteoporosis; hypothyroid; enlarged prostate; lymphedema, assorted mysteries) and Michael, 32, (intractable seizures; Gtube), who were born with an undiagnosed progressive neuromuscular disease and courageous spirits. Our Angel Michael received his wings in 2003 and now resides in Heaven. Our Angel Jon lives at home with me and Jim, the world's most wonderful dad.

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    Hi Rose. San Diego County stopped the yearly need for home visits and documentation. They don't have the manpower or finances needed to keep that portion up, which is good for us. That would have meant a yearly output of at least $600 from us to pay for the yearly investigations and court costs. This is a one time investigation to be sure Tyler is being properly taken care of. We met with our Regional Center Case worker this afternoon. They have to file a report for the courts and give their recommendations as well. Jan has known us for several years and will push the report through. It is a lengthy process and involves doctors, friends, relatives, social workers, family. We will also apply for SSI and IHSS in Tyler's name to start receiving his benefits (which hopefully they will allow us to bank for his future needs). So much to think about. I have a sheet that explains the process and would be happy to send you a copy if you'd like to see it.
    grandmother of Tyler (22): Ohtahara Syndrome/SCN2a gene mutation, cortically visually impaired, quadriplegic, severely developmentally delayed, no speech, severe intractable seizures, frontal and temporal lobe atrophy, progressive scoliosis/kyphosis, chronic kidney stones & UTI's, gastroparesis, 100% tube fed, autonomic dysreflexia, but what a precious gift from God. "Lord, grant me the serenity to accept the things I cannot change."

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    Wow 18!! I hope you all had a wonderful day of celebration!
    Mary Grace

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