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Thread: Dysphagia

  1. #41
    Distinguished Community Member Abby2006's Avatar
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    Oct 2006


    Agate she threw me under the bus said all theses diseases are a bit to much

    Last edited by Abby2006; 12-16-2012 at 01:45 PM.
    Stand for something or you will fall for anything

  2. #42
    Distinguished Community Member agate's Avatar
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    Oct 2006
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    The doctor wasn't quite ready to be a doctor yet, or what? I hope you can find someone more understanding.
    MS diagnosed 1980. Avonex 2002-2005. Copaxone 6/07 - 5/10.
    Member of this MS board since 2001.

  3. #43
    Distinguished Community Member Earth Mother 2 Angels's Avatar
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    Oct 2006
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    So, you just have one too many medical issues for this doctor to handle? That speaks volumes about your doctor's dedication to her profession. At least, she could refer you to another physician.

    Is the home health doctor still a possibility? I'm just thinking about you having medical care and physician coverage, while you doctor shop.

    For you to remain in your own home safely, you need assistance from a visiting nurse, a physician, and an aide or helper. What would be ideal would be for you to have a case manager with your insurance to arrange all of this for you, so that you don't have to deal with the stress. Is that feasible?

    What are the goals? To keep you out of the hospital, and hopefully in your own home. To ensure proper nutrition to bring your weight up and hopefully your red blood cells to avoid a transfusion. Through proper nutrition, you become healthier overall. To monitor you regularly to ensure that you haven't aspirated or that you have any other concerning symptoms.

    You can't reach those goals on your own. So, I'm praying for you to get the assistance you need to achieve these goals. I will worry about you, if you are all alone.

    Healing prayers are on their way ~

    Love & Light,

    Mom to Jon, 49, (seizure disorder; Gtube; trache; colostomy; osteoporosis; hypothyroid; enlarged prostate; lymphedema, assorted mysteries) and Michael, 32, (intractable seizures; Gtube), who were born with an undiagnosed progressive neuromuscular disease and courageous spirits. Our Angel Michael received his wings in 2003 and now resides in Heaven. Our Angel Jon lives at home with me and Jim, the world's most wonderful Dad.

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