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Thread: Dysphagia

  1. #1
    Distinguished Community Member Abby2006's Avatar
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    Default Dysphagia

    I just finished a 5 day hospital stay, got pneumonia from food going into my lungs now as the cervical dystonia has destroyed my throat. Then the MS flared up but I was able to add eight pounds ti my 57 pounds (D-3) screw up, and was having alot of fun just eating, eating BUT now no solid foods and this new thing is level 3 advanced, So off to find a Dysphagia diet. They told me drinking water is now dangerous, Man it just keeps getting better

    Abby

    just got word my D-3 level has gone from over 96 to now 86, well at least that was alll going in the right direction
    Last edited by Abby2006; 10-31-2012 at 11:47 AM.
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    Abby, I am so sorry about the hospital stay and the Dysphagia. Maybe it will not be too hard to find foods that you can eat with this. I understand about the water, but maybe some soft foods. You sure need weight, so keep looking for something. I am surprised the hospital did not recommend a diet before letting you go home - or at least your Doctor.

    Good Luck
    Virginia

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    Distinguished Community Member Abby2006's Avatar
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    Just has to be thin, They gave me a list of thngs I could have and things to avoid, So I went on line to get info to make sense of it all. I 'm not sure how much weight I can gain drinking jello

    Abby
    Stand for something or you will fall for anything

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    Distinguished Community Member agate's Avatar
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    I'm so sorry, Abby.

    Has anyone taken a look at you? You must look rail-thin.

    You may have to be the squeaky wheel and point out to them that you're seriously underweight, and do they have suggestions as to how you can regain the weight?

    EDITED TO ADD: Ohio State University apparently has developed a dysphagia diet. Here is a link for Level 3 dysphagia:

    https://patienteducation.osumc.edu/Documents/dys-3.pdf

    There are some higher-calorie foods that are allowed--grilled cheese, fruit pies, bananas, hot cereals, and many more. Bananas are often a good place to start, IMO. Loaded with potassium and very digestible.
    Last edited by agate; 10-31-2012 at 01:06 PM.
    MS diagnosed 1980. Avonex 2002-2005. Copaxone 6/07 - 5/10.
    Member of this MS board since 2001.

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    Distinguished Community Member SalpalSally's Avatar
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    So sorry you are going through this (((((Abby))))).
    I hope you can find a proper, easy to fix, easy to eat diet just for you.

    Be well soon..
    Love, Sally


    "The best way out is always through". Robert Frost







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    Distinguished Community Member Jeanie Z's Avatar
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    :) Hi Abby, My David has lost almost 40 lbs. since starting chemo. The nutritionist told him to get a can of Ensure and put a scoop of Whey powder and a raw egg in it. This gives him protein to build muscle and help prevent further weight loss. Use a blender or beater to make it smooth. I hope you will be able to have this. Check and see. Jeanie :)

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    Abby, both bananas and grilled cheese sandwiches sounds good to me. Hope you will take a look at the diet Agate found for persons with dysphagia.
    Virginia

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    Quote Originally Posted by Abby2006 View Post
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    Just has to be thin, They gave me a list of thngs I could have and things to avoid, So I went on line to get info to make sense of it all. I 'm not sure how much weight I can gain drinking jello

    Abby
    Baby food???????

  9. #9
    Distinguished Community Member Abby2006's Avatar
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    Been down for a few days dealing with a side effect from antibotic for the pneumonia.
    Think I lost my 8 pounds I worked so hard to get on and may even be be below 57 now but working on ideas to work this thing out.
    I'm into serious nutrition now and they have taken all the good stuff away - no bananas ( has strings) but you know Parsi I did think o baby food for right now,

    Getting a mini coffee grinder so I can gring of the almonds I was living on and put on stuff

    and getting a real mini steamer for some eggs and baked sweet potatoes, can't have rice or corn maxing out a credit card to do it but then again paying the hospital bill is going to be real brain stormer and I make $50 to much a year to get any help, I've just got to take care of me right now and hang the rest I am very tired and week but Lord willing I will bounce back.



    Abby
    Last edited by Abby2006; 11-04-2012 at 10:34 AM.
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  10. #10
    Distinguished Community Member Abby2006's Avatar
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    Thanks Agate thats more than I found or they gave me


    Abby
    Stand for something or you will fall for anything

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