((((((HUGS)))))) To All ~
Well, those pursed lips are definitely seizures. I was convinced this evening, when, again for the third night at 5:30, he had another episode, and squeezed my hand tightly. It lasted 2 minutes.
He had about 5 of these seizures last night over a period of 6 hours, one time it lasted 7 minutes.
This morning I called the doc to request a blood draw to check Jon's med levels, and I called the nursing service. Jon's nurse was unavailable, of course, and we aren't comfortable with nurses, who don't know Jon, drawing his blood, as it is quite an ordeal.
Jon's nurse will be here Monday. Meanwhile, we're increasing Jon's med doses to protect him from a full on tonic-clonic seizure.
Jon is peeing copious amounts, every 2-3 hours. The fluid in his torso is coming down. He's also producing in his colostomy bag now, which is a tremendous relief for him, I'm sure.
On the G Tube Front:
The GI doc called this morning, and he was quite nice to me. He was suggesting a button, but when I explained that Jon is on a feeding pump, he immediately said, "okay, sure, no problem." His office is ordering the tube, which Jon has currently, and when it comes in, the doc said that he would come to our home and place it. Finally!!!! We expect that to happen next week.
So, Jon could sure use some prayers that the med increase will work to stop these new seizures. We are grateful for all of your prayers. Please know that they are returned for you.
Love & Light,