Lots going on here with school starting up! The Y classes and piano (for the boys) and all our regular appointments (PT, chiro)....I feel like I live in my van! Caitlin is now completely off the topamax now! She had a really great week when she was only on 15mg in the PM dose and after I dropped the last pill off, she had a semi-big seizure 2 days later. She had reported to me that she felt 'shakey' (her words for it) and when I brought her into the house from the van, she had the seizure when I was putting her down on the carpet. Her eyelids fluttered and her arms jerked up and stayed and her back arched. Lasted about a minute and then that was it. She was all fine then but over this week, she has been so so. She is blocked up again though, I think the med changes messed with her regularity again. Hope once that is back on track she perks up. I don't want to have to go back onto topamax, I just remember weaning off lamictal, we had her on 1/2 tiny pill FOREVER as every time we tried to completely quit she reacted badly. I want to give it a week or 2 and hope she stablizes. Cross your fingers! She has her dental 'surgery' on wednesday so it's going to be a busy week. Preop physical the day before so I will be putting a lot of miles on my van! They are just filling 2 cavities and doing cleaning and xray under sedation. Have to be there at 6am and hopefully home by noon. My mom just got a part time job so I am hoping she still can pick up Logan for me from his prek class. She retired last yr, but wanted to work part time somewhere just to fill a little time.
Tyler has a consult with an ENT in 2 wks. His breath has just been rotten lately and I've been keeping track of when he wakes up and sleepwalks....didn't realize how much he did it until I saw on the calendar! Hoping they will schedule a tonsilectomy in the beginning of october so he is healed up for halloween. He is a mouth breather and I got some of that on video while he was sleeping to show the ENT. I guess with all Caitlin's needs, it's hard to notice the other kids medical stuff unless it is severe!
I'm adjusting to having 4 hrs without kids...it is still very weird though. I am always looking over my shoulder wondering what Logy is up to and then realize I don't have to worry, he is at school! I have a big long list of stuff I want to get done around the house...slowly but surely!! :)