Since Kathleen still seems constipated (goes very small amount about every 3-4 days). she still doesn't have control either and it's usually an accidenet. I don't believe she has the sensation of needing to go. Something I need to discuss with her DR. We're increasing the Amitiza to 24 mcg. in the PM. Hopefully it won't cause diarhea. The ciproheptadine (for pain) is still making her very hungry even at half the dose she was taking, so now we'll cut it in half and give half in the AM and half in the PM to see if it helps with the hunger. It has helped with the nerve pain but she still gets some pain by about day 3 of no BM. She starts school next Tuesday so hopefully this will al work well for her. She's so excited to start high school.I
ve already talked with her TA who's been with her for 2 years, she's pretty excited also. I think we're gettting closer... We've requested an appointment at the Down syndrome clinic at Boston Children's Hospital. They will coordinate appointments with a pediatrician, dietician, hearing test, urologist,and orthopedic dr. Just waiting for the date.