Hi,
<sigh> That is how I always feel when dealing with Caitlin's issues...like the doctors don't really solve any problems and just leave us hanging. As of this day, it has now been at least 9 days since C has pooped. I called ped on monday and she said give miralax (1 cap) 3x/day for 3 days and then to call back if nothing. Well, after 2 days, still nothing. I now notice her urine is dark brownish in color. She is still drinking water, but has hardly eaten anything the past few days. I feel like all she ate today was the medicine I forced her to eat (in applesauce). I 'yahooed' the dark brown urine and saw that that is a liver malfunction sign. With her starting the new med (felbatol) I will be calling dr back tomorrow and not waiting until thursday. This just isn't right. I said to Brian, it is so annoying that when I call I feel like 'oh silly mom worrying about not pooping' I know better than to call after only 3 days. I only bother calling to ask about stuff when it becomes a severe problem. The thing that pops into my mind most was the time when her shunt was overdraining (with vague symptoms) and I took her to a local ER after being sent home from the children's hospital...and they told me "school will just have to deal with her the way she is", when I remarked that the school kept calling me asking what they should do with her (as she was lethargic, etc). It's like, well geez, that really means that I will have to deal with her the way she is too, vs the doctors actually treating the problem!!! Just had to vent a bit! It is so wrong. In the meantime, she suffers. One good thing is tomorrow is our 'lab draw day', new med requires weekly blood draws so they will have that data and data from last week to compare with. It hasn't loaded into my online account yet (takes 2 weeks when it is ordered by an out of system doctor) so I can't see what the numbers are. I would love to see what the AST and ALT are now. Brian said, you'd think they would want to feel her abdomen or take a scan of her belly. I kindof agree.
Lisa O.
<sigh> That is how I always feel when dealing with Caitlin's issues...like the doctors don't really solve any problems and just leave us hanging. As of this day, it has now been at least 9 days since C has pooped. I called ped on monday and she said give miralax (1 cap) 3x/day for 3 days and then to call back if nothing. Well, after 2 days, still nothing. I now notice her urine is dark brownish in color. She is still drinking water, but has hardly eaten anything the past few days. I feel like all she ate today was the medicine I forced her to eat (in applesauce). I 'yahooed' the dark brown urine and saw that that is a liver malfunction sign. With her starting the new med (felbatol) I will be calling dr back tomorrow and not waiting until thursday. This just isn't right. I said to Brian, it is so annoying that when I call I feel like 'oh silly mom worrying about not pooping' I know better than to call after only 3 days. I only bother calling to ask about stuff when it becomes a severe problem. The thing that pops into my mind most was the time when her shunt was overdraining (with vague symptoms) and I took her to a local ER after being sent home from the children's hospital...and they told me "school will just have to deal with her the way she is", when I remarked that the school kept calling me asking what they should do with her (as she was lethargic, etc). It's like, well geez, that really means that I will have to deal with her the way she is too, vs the doctors actually treating the problem!!! Just had to vent a bit! It is so wrong. In the meantime, she suffers. One good thing is tomorrow is our 'lab draw day', new med requires weekly blood draws so they will have that data and data from last week to compare with. It hasn't loaded into my online account yet (takes 2 weeks when it is ordered by an out of system doctor) so I can't see what the numbers are. I would love to see what the AST and ALT are now. Brian said, you'd think they would want to feel her abdomen or take a scan of her belly. I kindof agree.
Lisa O.
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