((((((HUGS TO ALL))))))
Jon fell asleep at 1:45 this morning, but he was slumped over in bed (probably trying to get his left hand to his mouth, which he does for comfort, but unable to do so, as it is tied down to prevent him from ripping out his PICC line). Jim said that Jon's SATS were 78, so Jim straightened up Jon, then suctioned him at 2:30 a.m. Jon has been awake since then.
Sleep deprivation is an engraved invitation to a gigantic tonic clonic seizure.
> > > > > Please pray for Jon to sleep well and for several hours and that he will not seize.
We bathed Jon last night, and when we rolled him on his left side, he was in excruciating pain. He was beet red. This is common after hospital release, because their beds are insufficient, as I've stated previously. Even when Jon's home bed has been on the fritz, and he's been relegated to the full air mattress, rather than alternating pressure/low air loss, he quickly develops unremitting pain in his hips.
When we pulled Jon up in the bed this morning, Jon grabbed his left thigh, rubbing it, saying, "Owie. Owie."
We gave him a Tylenol.
His heart rate has been in the 80's ~ a sign of pain, as well as infection. And probably sleep deprivation.
> > > > > Please pray that Jon's hip pain will subside soon.
Probably because he is tired, and maybe because he still has pneumonia, Jon's SATS have been dropping regularly throughout the day today. He held in the 90's yesterday, but today, he's dipping into the 80's, requiring suctioning.
> > > > > Please pray that Jon's SATS will go up and stay up, that he will cough on his own, and that his pneumonia will resolve soon.
Last night, Jon began bleeding from his indwelling catheter. A delayed reaction to the catheter change, I suspect. We irrigated his catheter last night, and the blood did stop for a few hours, but now it's returned. He needs another irrigation.
> > > > > Please pray that the bleeding will stop.
Because Jon is congested, we decided to lower his feeding rate to 75 ml/hour from 90 ml/hour. That probably doesn't sound like much, but it all adds up in 24 hours. He will be receiving less than his allotted 6 cans/day of formula, but we have to determine whether we've increased him too rapidly and if that is the source of his congestion.
We're still doing well with the IV Zosyn. No problems there, which is a relief and may it continue to be so.
The good news is that he has lost most of the fluid in his torso, and he looks like himself again. Even his legs are looking less swollen. This is a blessing, of course, and we give thanks for it.
Now that you've read our prayer requests, we thank you for praying with us. Just by reading, you've been praying. And your positive energy is now flowing toward Jon. God Bless You for this gift.
Our prayers are going up for you too always.
Love & Light,