Page 3 of 5 FirstFirst 12345 LastLast
Results 21 to 30 of 44

Thread: Is This Still a Support Forum for People with MS?

  1. #21
    New Community Member
    Join Date
    Jun 2012
    Posts
    3

    Default

    Quote Originally Posted by Mike Weins View Post
    I was just stating that we don't frown upon discussion of medical marijuana is all ;) Give some incentive to those that were wondering if it's a viable option to speak up and ask :)
    I never felt decent MMJ discussion was not allowed here. It seems that a consensus has been found (mmj should be an option) that still hasn't translated into any change IRL for anyone. Maybe I'm just too New England-centric to have noticed anything.

    Recently, I was too eager to try Gilenya and it nearly killed me. We have enough history on pot to know there's no "black box" warning looming soon after getting the FDA's blessing
    I'm furious at not being able to work on a few pot recipes without putting my family or property at risk.

    There's no way to entertain this train of thought without it getting political. I always thought the mods here were pretty level-headed so I'll respect the restriction and continue to harass my legislators instead. In the meantime, I'm no longer interested in reading anything that doesn't relate to work on a cure. I'm tired of being a piggy bank for drug companies while they work out the kinks to their own recipes at our expense with the full support of the NMSS

  2. The following 4 users say "thanks"


  3. #22
    Distinguished Community Member
    Join Date
    Oct 2006
    Location
    North Carolina
    Posts
    458

    Default

    Hi Mike, I have been around since September, 2000 so I think that is soon going to be 12 years. I have looked around other forums (especially when this one was down) but this is the one I like. I don't find a lot of problems with it. I guess I am not looking for the "bells and whistles" so therefore it suits me fine. I have not been to another forum for a long time since this one has been back up for awhile now, so I am not quite sure what they have that we don't. Also, I guess some of the younger people would care about things that some of us older ones do not.

    I would like another way to contribute other than iGive. That has not worked out for me, but Paypal would be great if we can get that set up. I think a lot of people who use online shopping would be comfortable with Paypal. That might help with things a little.

    This one thing has already been addressed, but if possible to keep us high on the google list would probably help bring new people in.

    Thanks,
    Virginia
    Virginia

  4. The following 4 users say "thanks"


  5. #23
    Distinguished Community Member agate's Avatar
    Join Date
    Oct 2006
    Location
    Oregon
    Posts
    1,008

    Default

    I've looked around this site to find out about how to donate to it and can't find any information other than the iGive logo. A clearly indicated message about how to contribute, offering more than one way if possible, would be helpful.
    MS diagnosed 1980. Avonex 2002-2005. Copaxone 6/07-5/15/10. Member of MS forum here since 2001.

  6. #24
    New Community Member
    Join Date
    Jun 2012
    Posts
    3

    Default

    re: fundraising
    how about sticking a Flattr button on somewhere? Addresses for Bitcoin donations seem to be catching on in a lot of places, too

  7. #25
    New Community Member
    Join Date
    May 2009
    Location
    The Woodlands TX
    Posts
    1

    Default

    Personally I haven't been here for many, many years. My MS is advancing at break neck speed. No one at the time had any ideas to help with my issues. Still not sure if they can be discussed here now.

    Glad to know the group is still around.

    KK

  8. The following 3 users say "thanks"


  9. #26
    Distinguished Community Member
    Join Date
    Oct 2006
    Location
    North Carolina
    Posts
    458

    Default

    KK, don't know of any MS issues that cannot be discussed here. We just try to keep politics out of it, but some pretty bad things MS wise have come out.
    That is one of the reasons we are all here - to support if possible. Obviously, we are not Physicians, but if someone has some good input into something
    they usually try to help.
    Virginia

  10. The following 3 users say "thanks"


  11. #27
    Administrator/SYSOP Mike Weins's Avatar
    Join Date
    Oct 2006
    Posts
    663

    Default

    Right now there is no way to donate. Dr. Hoch had to set up an entirely new paypal account, bank account, and something else to do with BTC Inc being a 501c organization. He's been pretty busy the last two months (he finally got to go on vacation) at the hospital so I'm not sure where all of that stands currently.
    Question: Why can't I post links or pictures?
    Question: Why can't I have a signature, avatar, or profile picture?
    Question: What's wrong with my account?

    Answer: You are in the "registered users" user group. This group is very limited in what it can do. This will annoy spammers to no end Just keep posting once you have been registered for 30 days and have made 11 posts your account will be "unlocked".

  12. The following 3 users say "thanks"


  13. #28
    Community Member
    Join Date
    Jul 2008
    Location
    Central Maine
    Posts
    30

    Default

    I always come here when I have questions with my health and/or MS and I have always received good support.
    Jan
    "never let it be too late"

  14. The following 4 users say "thanks"


  15. #29
    Distinguished Community Member
    Join Date
    Oct 2006
    Location
    The South
    Posts
    460

    Default

    Where is everybody?

    Gabriella
    Progressive/Relapsing MS, Myasthenia Gravis, Spinal Stenosis, Degenerative Disc Disease, Diabetes, Hypertension, Hashimoto's Thyroiditis
    Advocate for ADA, Artist's Community for Change, ADAPT, Universal Living in Place, HopeKeepers, Complementary and Alternative Medicine

    "Life is mostly froth and bubble, two things stand like stone. Kindness in another's trouble, Courage in your own"........Adam Lindsay Gordon

  16. #30
    Distinguished Community Member renee's Avatar
    Join Date
    Oct 2006
    Location
    Up-upstate NY where it gets cooooold.
    Posts
    233

    Default

    Hi,
    I come here because MS freaks people out-
    you contributors have it and get the big IT.

    Thank you,

  17. The following 2 users say "thanks"


Page 3 of 5 FirstFirst 12345 LastLast

Similar Threads

  1. Working out bad for people with CP?
    By funnylegs4 in forum Cerebral Palsy
    Replies: 6
    Last Post: 02-22-2013, 07:54 PM
  2. Thought some cat people might like this.
    By houghchrst in forum Pet Therapy
    Replies: 12
    Last Post: 04-01-2012, 12:48 AM
  3. People not replying...
    By Annieb123 in forum Chronic Pain
    Replies: 3
    Last Post: 10-28-2011, 05:42 PM
  4. Famous People with Epilepsy
    By howdydave in forum Epilepsy
    Replies: 19
    Last Post: 09-15-2011, 05:53 PM

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •