I wish every newborn baby could be tested for that long QT syndrome myself. I am glad you are taking it serious if they have said that you have it Todd. I wish your parents understood more about how varied heart conditions are. Try and not let them frustrate you if you can.
Keep us informed. Doctors are confident you will be okay during this wait. They need time to be accurate perhaps on what they are doing.
I came back to say this much, I think that they know you have it is to your advantage. It is when they don't know about the LQT that there is the biggest danger.