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Thread: Just diagnosed

  1. #11
    Community Member
    Join Date
    Jul 2008
    Location
    Central Maine
    Posts
    30

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    Dawn,
    Welcome sorry for your DX there are many amazing people here.

    Remember everyone's MS is different and be sure you like your Neurologist.
    Jan
    "never let it be too late"

  2. #12
    Distinguished Community Member
    Join Date
    Oct 2006
    Location
    North Carolina
    Posts
    458

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    Hi Dawn and welcome to BrainTalk.

    I have had MS for 35 years or so, but was only diagnosed 12 years ago. We know from my medical records that it has been that long. I remember very well
    when I was where you are now. I was really scared. This forum helped me a lot. Luckily, I found it right away and got some really good feed back.

    I am, presently not using a cane or any assistance in walking, but as Gary said if you need it, by all means use it. I can't walk far, but I have just recently
    began seeing a Physical Therapist. I am fortunate enough to have one available who was trained in dealing with MS issues. I am hoping that with her help I will be able to strengthen my legs and get a little extra walking time when I am shopping or doing other things.

    When I was first diagnosed I started right away doing Yoga and have continued to do it every since. I do believe it helps. I took enough lessons to learn enough to use a tape and do it at home. I do a gentle type Yoga that is supposed to stretch and strengthen. It has helped with the spasticity for sure.

    I was also on Avonex in the beginning, but I have been on Rebif since it was introduced into the US over 10 years ago. I don't know that one is better than the other as far as the disease is concerned, but I just think it depends on what seems to agree with the individual involved.

    Your balance very well may get better as you learn to manage your MS. I do hope so.

    Please post and keep us informed as to what your Neuro says and if you are on Amprya. I do not have first hand knowledge of the drug, but have heard others say it helps.

    Good Luck!
    Virginia

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