2012 hello?

[Fillmore]

Well I see there has been no posts here "this year", as in 2012, so I thought I would introduce myself again now that I have had a diagnosis [and the experience!!] of Trigeminal Neuralgia.

I hope the lack of activity is not an indication that it killed you all off... blessed relief though it might be, lol. {no? too dark? sorry.

Anyhow, my diagnosis was "Atypical TN" because the attacks are not sudden onset, nor do they go away quickly. My worst attacks were 3 hours of 11/10 pain, but mostly I have that trio of pain [eye, sinus, tooth] plus a line to my neck from my face that is more or less tolerable pain.

Also, in January this year I had it on "the other side"!! Thats pretty rare, isn't it? Snce 2010, it was allways and only on the left side, but I had one bout on the right in January.

I can count my lucky stars that I have only had 5 periods of it, lasting 2 weeks to 2 months. It is kind of like cluster headache pattern in that regard.

These "sessions" seemed to follow a bout of flu.... anyone else?

Thx for listening... I dont know anyone else who has had TN... And I often get that "fear" where I break out weeping when I say the words [for TN] out loud so I cannot talk to anyone about it.

anyone out there?

[joy]

Oh yes there are. I think many of us have so many health issues that we have a forum called Emotional Support. I and I think some other TN folks who have had the experience of lightning bolt pains meet there. I hope you will visit there if not many post here.

I too have had pains on both sides. I have had mine since the 90's and am on continuing medication. I am thankful at least that mine is not as it was when it first started. Oh what a whopper it was. I was beginning to think that after my 5th and the 8th crainial nerve (menieres disease, with bouts of naseau and viertgo and constant weird sounds in ears) when I had difficulty swallowing that all my further health issues were going to be consume the 12 crainial nerves. But it was worse than that. I hope you find relief..

[dbobsnodgrass]

Dark is okay.)

TN1 and after a few procedures, I just have a little area just above my right lip that still grabs my attention.

I truly hope you don't get to know other big words.

My best to you and yours, bob

[joy]

wonderful to "see" you bob.. often even my fake teeth lets me know it is not over at all. but better than at beginning.so i'll take that

[beaming66]

I am still here on the side lines ..I have a PNS for my t.n. I have had my stim since 2002. I dont post much here ..only when I think I can help someone who is going threw having PNS surgery. but I am still lurking...
low pain wishes to the room and PEACE
BEAMING

[joy]

I am glad you do come here Beaming as I would be of no help. I have been lucky as I have fairly good control with meds..