View Poll Results: Would you like a CFS Forum on Brain Talk?

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  • Yes, CFS patients neeed their own Forum.

    6 100.00%
  • No, CFS patients can hang out elsewhere.

    0 0%
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Thread: POLL re: CFS Forum on BT?

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  1. #1
    Distinguished Community Member Beader's Avatar
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    Question POLL re: CFS Forum on BT?

    Hi BTers!

    I'm creating a poll to find out if people would like to see a CFS forum here on Brain Talk. CFS stands for Chronic Fatigue Syndrome and is also known as ME, Myalgic Encephalomyelitis, as well as CFIDS, Chronic Fatigue Immune Dysfunction Syndrome. Yes, you'll get all three in the same neat package with bows on it!

    CFS is often confused with Fibromyalgia, but the CDC says they are different syndromes. Since no one actually knows the cause of either one, and there exist no definitive tests for either one, it's anyone's guess as to whether they are actually different diseases or not. There are numerous examples of CFS occurring after an infectitious disease outbreak, but I've never heard that to be true of FMS. CFS diagnosis does not involve trigger/tender points, while FMS does.

    The best-known symptom of ME/CFS is fatigue. However, the fatigue of ME/CFS is nothing like the fatigue most people experience at the end of a long day or following a strenuous workout. The Centers for Disease Control (CDC) describes the fatigue of ME/CFS as “severe, incapacitating, and all-encompassing.” In fact, the fatigue people with ME/CFS experience is so severe that it significantly limits their ability to work, go to school, participate in social activities and take care of their own personal needs. The most severe cases can leave patients housebound or bedridden.

    A key component of ME/CFS fatigue is post-exertional malaise. This is extreme, prolonged exhaustion and a worsening of symptoms following physical or mental exertion. The symptom exacerbation usually begins 12 to 48 hours after the exertion and requires an extended period of recovery. Other fatigue characteristics ME/CFS patients describe include feeling like they have the flu all the time, a feeling of heaviness in their limbs, and low energy levels accompanied by a feeling of over-stimulation.

    Another defining factor of the fatigue of ME/CFS is that it is not relieved by sleep. Patients may awaken feeling just as fatigued as they did before they went to sleep. Because getting good, deep, refreshing sleep is essential for the body to replenish itself, healthcare professionals will often address sleep issues first. If sleep problems can be corrected, fatigue symptoms should begin to improve as well.

    Last but not least, would you be in favor of there being a specific CFS Forum here on Brain Talk?
    Please answer with your vote. Thanks.
    Last edited by Beader; 02-09-2012 at 02:50 PM.
    Sher
    My Life Menu: CFS probably since birth, full flavored since the 80s, with Fibromyalgia, Major Depression with a side order of Anxiety and Agoraphobia sauce, Restless Leg Syndrome with spicy Other Sleep Disorders, 11 Eye Surgeries, a generous helping of Gut Problems

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