I was diagnosed with PD in 1999 at the age of 61. Like many I went on an emotional roller coaster for several years. I do not exaggerate when I say BTC saved my life in those years. There were people to talk with every day and night to answer questions, reassure, and share the burden of the disease. I give my thanks to those folks who constantly "manned the switchboard".
My PD has progressed to the point where I am about to undergo DBS. I would like to get some information from DBS patients that is not filtered through Medtronics or some medical organization. Specifically my primary symptom of concern at this time is "freezing" or "sticky feet" where I am walking and suddenly my feet won't move. Can any DBS patient advise whether they had that symptom and whether it was cured by the surgery. Any other information that DBS patient can provide regarding other symptoms such as tremors, fatigue, stiffness and cramping, and the effect DBS had on same would be appreciated.