Just received a report from the day I see the neuro. Heres an excerpt..
'This lady complained of a number of subjective symptoms. On examination the remarkable findings were hyper-reflexia in the upper limbs on deep tendon jerks and areflexia in the lower limbs. There was also toe fanning on the right side and equivocal plantar response on the left. The rest was unremarkable.
Overall I am not sure sure whether there is an organic origin to the complex combination of symptons reported by this patient. I would think it be useful to rule out any posteria fossa structural lesions or abnormalities in blood vessels possibly related to ehlers danlos syndrome. Having noticed some peripheral nerve signs, mainly the reduced deep tendon jerks in lower limbs, I think it would be useful to have an EMG......'
So maybe it seems it could be non organic and all in my head lol!! Makes me feel like I do not even want to bothered to go through the EMG, MRI/MRA if they are going to tell me its all in my head which I have heard some other people say they was told on here. I really do not feel it is as have not felt right for some time.
Really not sure how to feel right now.