I have had diagnosed Fibro for years with every trigger point being positive. I am in a ton of pain all of the time. My doctor put my on Savella and I loved it then my insurance stopped paying for it so I had to stop taking it and move on to Lyrica. I take Lyrica 50 mg 3x daily and it helps a bit. I also take Amrix 15mg 2x daily. I am frustrated though because there are days I can't get out of bed. There are days I can't walk even to the bathroom and have to crawl there crying the whole way. I am 38 and get dirty looks when I go to Wal-Mart and have to use a scooter because there is no way I can shop and walk. I hate doing it because I know there are elderly people who have to push on and walk with their canes because of me... I use a cane sometimes. I have also been wheelchair bound twice due to the fibro.
What frustrates me is that besides the Lyrica and Amrix (which is a muscle relaxer... basically flexeril but time released), the doc will do nothing else for me. He won't send me to someone who can do nerve injections. The strongest pain meds he has put me on have been naproxin and neurontin. They just don't help. I want to see a pain specialist but I really just want help to control the pain. I don't want to be drugged up all the time.
Any suggestions? Should I see someone else? Maybe go to Pittsburgh? Are there fibro specialists?
Thanks
Stacie
What frustrates me is that besides the Lyrica and Amrix (which is a muscle relaxer... basically flexeril but time released), the doc will do nothing else for me. He won't send me to someone who can do nerve injections. The strongest pain meds he has put me on have been naproxin and neurontin. They just don't help. I want to see a pain specialist but I really just want help to control the pain. I don't want to be drugged up all the time.
Any suggestions? Should I see someone else? Maybe go to Pittsburgh? Are there fibro specialists?
Thanks
Stacie
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