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Thread: Movin' Movin' Movin' Lets go!

  1. #1
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    Lightbulb Movin' Movin' Movin' Lets go!

    So, I have been asked to go to PT every 6 months for a year and a half for a tad of a R foot drop. I have declined. They wanted to send me to the Big Rehab Hospital for this. The people who work there have much bigger problems to deal with- that was my thinking. But this summer, when they added balance and gait, I decided to go but to a private PT practice here in my neighborhood. So far so good.

    Yesterday I went and found out that I have muscle atrophy in both legs, R>L. No surprise to many of you, this happens. I didn't know it was happening to me! When I lift my R knee up (as in a march) and am told to set it back on the ground, it drops like a stone. There's more but it has scared me. I had the exercises and E-stim and Russian-stim. I walked there because the bus hadn't come and walked home. It killed me. I went to bed for 3 hours. Today I took the bus up, had the treatments and did the exercises and walked home on purpose. I am cooked. Overcooked.

    So, gotta get movin'. Tissue is disappearing. What are you doing in or out of PT?
    ANN
    Last edited by stillstANNding; 08-17-2011 at 04:07 PM.
    There comes a time when silence is betrayal.- MLK

  2. #2
    Distinguished Community Member agate's Avatar
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    I've been through several courses of PT--about 8 weeks each time, twice a week sessions of about an hour. I went to PT places the doctor referred me to--they weren't at hospitals or rehab centers.

    PT was very helpful for me. I did exactly what they told me to and kept up with the exercises I was given to do after the PT stopped.

    But how useful is PT if you're exhausted from the trip there and back? Have you looked into other ways of getting there--maybe a volunteer driver?

    As time goes by you might find that you're better able to tolerate the walking that wore you out this time.

    I've heard that sometimes MS Society chapters can come up with assistance. There may be a voucher system for taxi travel back and forth.

    I hope you can find a better way to get there.
    MS diagnosed 1980. Avonex 2002-2005. Copaxone 6/07 - 5/10.
    Member of this MS board since 2001.

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    Thank you, Agate. There is a bus stop on the corner of my street so I am lucky and it goes right down the Centre St of the neighborhood w many commercial businesses and restaurants. The bus just wasn't coming yesterday and I didn't want to be late. It is my practice to take the bus "upstreet" and to walk home, a gentle down hill route. I just overdid it yesterday w the double walks evaluation and treatments. I hope to walk more in general but until I am stronger I'll just wait for the bus.

    Any one join a Y or Gym of some sort? i am thinking that the PT will be well over by winter and I'd like to be involved in something so as not to lose ground.
    There comes a time when silence is betrayal.- MLK

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    I do Yoga and have for very many years. I do the gentle Kripula Yoga, because I would not be able to do more. I also do 30 deep knee bends. However, this makes me wonder if my muscles are atrophying also, because it has been so long (years) since I could actually walk at a good clip or for a long distance.Virginia
    Virginia

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    Virginia- I think that yoga is a very good practice for balance and coordination and centering. I just do the one's that start from a "seated on the mat" position. My MS Specialist recommends yoga. If you can do standing one's- that's great.

    The deep knee bends are part of the exercises in my current homework. The only change is that bum is out, meaning back is not straight, and to hold on to the kitchen counter unless you happen to have a ballet bar installed in your house. Good going. However you can move- keep it up and make it a priority.- ANN
    There comes a time when silence is betrayal.- MLK

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    I do a gentle yoga class every week. Today as a matter of fact. When I first started doing it, I would bring in a chair. I stopped doing that after 5 or 6 weeks. Now I do the standing stuff with a wall behind me. The teacher refers to it as a prop. I love yoga. All the stretching feels great and the twisting stuff quiets my central nervous system. I think my balance is a lot better (although still terrible) but I think a lot has to do with strengthening my core.

    The other class I do(3x a week) is for the senior members of the place, and Susan (who is 52). Some of it is chair pilates, some weight work, some balance and 1 day a week, mat pilates which I love.

    When I don't get as much exercise I can tell. I am stiffer, more lethargic. I also swim 20 laps 3x a week for cardio. Another benefit is the psychological empowerment. I get to beat my chest tarzan style (okay, in my head anyway.)

    I like your title: movin movin movin. ;-)

    ~Susan
    Be the person your dog thinks you are

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    Susan, I am impressed. Five classes in total and 3 swims! You go, woman whose dog is right!
    ANN
    There comes a time when silence is betrayal.- MLK

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    That's my goal, Ann. This summer it has happened most weeks. When I start work in 10 daze, it drops down to 3 classes usually and hopefully 3 swims, but more typically 2. Right now my supervisor is disgusted with me for being unwilling to go to meetings in the morning. Geez, it's summer vacation. I am off the clock. I have made this exercise thing my priority.

    Go for it, Ann. It is addictive once the ball gets rolling. Really challenging to start again. But worth it.
    ~Susan
    Be the person your dog thinks you are

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