Useful Websites for Stiff Person Syndrome
A very comprehensive and thoughtful website that covers so many aspects of SPS is:
http://www.thetinman.org/
This was put together by a person with SPS who clearly has some type of scientific background. It also has research footnotes if you want to explore further some of her topics.
https://rarediseases.org/rare-diseas...rson-syndrome/
This is a compendium of Rare diseases. SPS is on it and has useful information.
This is another website about SPS, and it is from NIH. It is a great place to explore even if you know a lot about SPS already. Its also helpful to give to your docs who know nothing about SPS
https://rarediseases.info.nih.gov/di...erson-syndrome
A great essay on invisible illness, from someone who has SPS
https://patientworthy.com/2020/01/29...rson-syndrome/
Posting Permissions
Reply With Quote