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Thread: November, 2020

  1. #61
    Distinguished Community Member Earth Mother 2 Angels's Avatar
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    ((((((Hugs to All)))))) ~

    ANN ~

    Thank you for checking in, and I'm glad that you're okay. Big hospitals can be exhausting to traverse. Our hospital has a new cafeteria/restaurant, and it isn't close to anything in the hospital. It's on the same wing as the cancer unit, but it's still a trek to and from. I hope you've recovered by now.

    A little surgeon humor, eh? If he was my doctor, I would have responded, "Doctor, you should take your act on the road! You're hilarious!" Then, I'd give him a ceremonial scalpel as a going away gift on my last visit with him. My favorite doctors are the ones with a sense of humor. Even if it is corny.

    Do you have an explanation for your weight loss and appetite issues? Two pounds in two years is maintenance, which is good. You certainly eat healthy, nutritious food. Didn't you try Orgain? I think that they have some new products now, in case you want to supplement your diet with organic plant based food.

    agate ~

    What is the test kit in your Wellness At Home package? Is it a nasal swab? Do you swab yourself and send the sample in by mail for analysis? And what is the name of the drug included with this package? Maybe we should all order this package.

    I think a lower grade body temperature is typical for Seniors, probably related to the thinning of our blood as we age, or perhaps our maladies, or the meds we take, or our diet, or our exercise and blood circulation. Or all of those and more. The older I become, the less I can tolerate excessive heat, cold (which is in the 40s for us), and humidity. I'm wearing sweats today, while younger folks are outside in shorts and t-shirts. Of course, I don't get outside as much as they do, so that also makes a difference.

    Please update us on the Wellness At Home process. Thank you!

    Linda ~

    It is amazing what you've accomplished this year, with John's emergency, transportation problems, and all of your hard work. Then being able to sell your incredible harvest to people during a pandemic is a feat. Let's not forget the dancing in the street last week.

    Whatever you and John do next, take time to rest, and feel good about all that you've accomplished this year and throughout your lives together. Treasure your moments together along with your memories and be proud of yourselves!

    Virginia ~

    I'm also hoping that SuzE-Q will check in soon with us. And all of you, who may be hesitating for some reason, please let us know how you are.

    Jeanie ~

    We love you and are praying for you.

    Prayers, love, and healing, positive energy for all ~

    Love & Light,



    Rose

    *Virtual Hugs Are Germ-Free!
    Mom to Jon, 49, and Michael, 32, who were born with an undiagnosed progressive neuromuscular disease and courageous spirits. Our Angel Michael received his wings in 2003. Our Angel Jon received his wings April 2019. April 2020, Jim, the world's most wonderful Dad, joined them. Now, they all watch over me.

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  3. #62
    Distinguished Community Member agate's Avatar
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    The WellAtHome kit was sent out to anyone on United Health Care who requested it in response to a notice that was sent out. Other insurance companies may be doing something similar. I saw a huge stack of similar-looking boxes come in the mail the other day for some residents here, and they were from HealthNet. So maybe your insurance company will be contacting you. I don't know how you could sign up for a kit.

    It's billed as providing me "with the resources you'll need to get care immediately if you have flu or COVID-19 symptoms."

    The medicine is Tamiflu (oseltamivir).

    The test kit comes with a warning label: "Do not open until directed." However, since the box was already half open, I peeked into it (don't tell anybody) and saw that the test involves a nasal swab to be inserted in both nostrils. I'd have to call an 800 number and have a WellAtHome doctor activate the test kit.

    I would call to have the test kit activated if I had a fever and other symptoms of COVID-19.

    I've done the 3 days of temperature testing, and averaged out at 96.4'F. So that is my baseline.

    Wonder if that makes me cool?

    This is the first time I've signed up for one of these United Health Care offers. They keep inviting me to have a home health visit--a doctor comes to the home and checks you over. It takes about an hour. I'm not sure I wanted an insurance company's involvement in my health care to that extent, and so I didn't sign up for that.

    But this kit sounded like a convenient thing to have in an emergency. With flu or COVID, a person might not feel well enough to get to a doctor or clinic, and the doctor or clinic might not want me there anyway since I'd be "shedding" the virus.

    More information about this:

    https://www.wellathome.com/faq
    Last edited by agate; 11-14-2020 at 06:42 PM. Reason: adding link
    MS, diagnosed 1980. Avonex 2001-2004. Copaxone 2006-2009.

    "Always put off until tomorrow whatever you think you should do today." --Anonymous



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  5. #63
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    ANN, that actually sounds like good news.

    Re temp : all of my digital thermometers read around 96.6, but I have an old fashioned mercury thermometer that typically reads 97-98.6 F. And my infusion room RN measures me accurately in the 97-97.6 range.

    I have concluded that those OTC digital thermometers are worthless.

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  7. #64
    Distinguished Community Member agate's Avatar
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    "Experts" are advising people to throw any mercury thermometers away but I'm clinging to mine. The mercury is dangerous but how often do we break thermometers and come in actual contact with the mercury?

    I've used mercury thermometers all my life and recall one breaking exactly once.
    MS, diagnosed 1980. Avonex 2001-2004. Copaxone 2006-2009.

    "Always put off until tomorrow whatever you think you should do today." --Anonymous



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  9. #65
    Distinguished Community Member agate's Avatar
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    Just to let people know: There may be a new member here one of these days. A Facebook friend who was a member here many years ago recently posted on FB that she wished she knew of a forum where problems like how to clean around the base of a toilet while being mobility-impaired are discussed.

    I thought of us. We often discuss such problems, don't we?

    So I took the liberty of mentioning us. She wanted the link to this forum. I sent it to her by PM.

    She's a cyberfriend of some people here already. I think she'd feel welcome here.

    But she's pretty busy, and so I won't be surprised if this doesn't happen. But I thought it would be a good idea to let people know.
    MS, diagnosed 1980. Avonex 2001-2004. Copaxone 2006-2009.

    "Always put off until tomorrow whatever you think you should do today." --Anonymous



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  11. #66
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    Agate, sounds great to me. Thanks for recommending us.
    Virginia

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  13. #67
    Distinguished Community Member Howie's Avatar
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    We survived Friday 13th....I hope.

    I just ordered out again from Domino's. I am out of coleslaw. I have a fresh bag, but didn't feel like making it. So I ordered out instead.

    I was up really late last night watching TV, and didn't get up until 1:30 this afternoon. So I got my 8+ hours of sleep. Now it's time to chow down.

    Everyone have a great evening.
    "Given the millions of billions of Earth-like planets, life elsewhere in the Universe without a doubt, does exist."

    Albert Einstein

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  15. #68
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    I’m glad you are treating yourself, Howie.

    Rose, I do not have an official weight loss cause. Unofficially, it seemed to be a gastric motility problem. There was no problem with appetite, thank God.

    I saw my MS Specialist today and one of the new fellows. Today we were able to park downstairs and just take the elevator up rather than go in the main entrance and traipse thru the complex. Still, I logged 0.4 miles there.

    The verdict is that I am in very good shape for anyone my age and especially for an MSer. (Beaming). We are going to increase Tegretol and may switch to Trileptal. I’m favoring no change.

    And I’m going back to the physiatrist but a different one, closer to home. And that’s all.

    Peter led a North American teleconference this afternoon which continues tomorrow.

    We are going into the twenties tomorrow night - not looking forward to that.

    Best to all of you,
    ANN
    There comes a time when silence is betrayal.- MLK

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  17. #69
    Distinguished Community Member agate's Avatar
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    Quote Originally Posted by Earth Mother 2 Angels View Post
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    agate ~

    What is the test kit in your Wellness At Home package? Is it a nasal swab? Do you swab yourself and send the sample in by mail for analysis? And what is the name of the drug included with this package? Maybe we should all order this package.
    Here you go, Rose. This seems to be exactly the same thing the insurance people sent to me. It's not clear how much of it is covered by insurance.

    https://www.letsgetchecked.com/us/en..._term=1999899_
    MS, diagnosed 1980. Avonex 2001-2004. Copaxone 2006-2009.

    "Always put off until tomorrow whatever you think you should do today." --Anonymous



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  19. #70
    Distinguished Community Member Earth Mother 2 Angels's Avatar
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    ((((((Hugs to All)))))) ~

    Howie ~

    What did you order from Domino's this time, and did you order enough for 2 meals? Hope it was tasty.

    ANN ~

    You probably told us about the gastric motility issue after all of your testing, but I forgot. How are you managing now? Do you eat small meals more frequently? Your menus are always mouth watering to me, so I know that you are eating healthfully.

    Congratulations on your bill of good health. Why is a change to Trileptal being suggested? Both Tegretol and Trileptal have been used for decades for seizure control. Neither one of my boys took either of them, but I know many parents, who had children on them. I don't know their differences or similarities.

    I hope you like your new physiatrist.

    Hello Peter, moms, and kitties!

    agate ~

    Thank you so much for sharing that COVID kit link. Yours came from United Health Care. I have that as my supplemental, so perhaps I can get them to send one to me.

    Jeanie ~

    We are thinking of and praying for you!

    Sending healing, positive energy and blessings to all ~ Be safe. Be well. Be content.

    Love & Light,



    Rose

    *Virtual Hugs Are Germ-Free!
    Mom to Jon, 49, and Michael, 32, who were born with an undiagnosed progressive neuromuscular disease and courageous spirits. Our Angel Michael received his wings in 2003. Our Angel Jon received his wings April 2019. April 2020, Jim, the world's most wonderful Dad, joined them. Now, they all watch over me.

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