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Thread: November 2020: Keep on Moving

  1. #1
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    Default November 2020: Keep on Moving

    MS creates some real challenges to keep on moving. It helps to inspire each other on how to find ways to move.

    Did you stretch in your bed, swing your arms, roll side to side today? Or perhaps you did housework? Or exercised in a pool? Tracked your count of steps? Chased your cat around the home? Pushed the wheelchair wheels with your arms at the store? Post them here and we can support and egg each other on.

    REMEMBER: this is a keep on moving thread, not keep on exercising! Any moving is important— it doesnt have to be “exercise”! Even Science proves that.

    THIS IS POSTED A DAY EARLY SO I DON”T FORGET!
    RABBIT RABBIT

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    Today I have not yet done enough steps. So far 374. I aim for 1,000 because I like how the app throws green confetti at the number. Its a graph where under 1,000 is orange, and under about 500 is red. Its an inspirer.

    I still have time to hit 1,000: most of my walking is after 4 pm.

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    Tomorrow, I will start Klonopin, gradually ease it in, and ease out ativan. Klonopin has a longer half life and May work better at tamping down spasticity. If so, I will be able to swim normally and walk more steps.

    The Pain mgmt people got the referral. The doc is review the materials to see of I am a suitable candidate. If so, will see him for a 90 minute interview to review the process and exchange the pertinent data. Its scary to do surgery for the pump, but also a ray of hope.

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    Good luck with the clonazepam. Interesting that your lead for that came from a patient group and not a specialist. It emphasizes the importance of these forums/groups.

    ANN
    Last edited by stillstANNding; 11-02-2020 at 03:19 PM.
    There comes a time when silence is betrayal.- MLK

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  9. #5
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    ((((((Hugs to All)))))) ~

    Sunshine ~

    Through the years, many of our Child Neuro children (young and adult) have had a Baclofen pump, typically to help with Cerebral Palsy spasms. Generally, they had success. Of course, many factors must be considered, so it's good that you are going to have a thorough risk/benefit analysis with your doctor.

    Also, lots of our kiddos took Klonopin, either for spasms or seizures. I hope that it works well for you.

    I'm sending you positive, healing energy.

    Love & Light,



    Rose

    *Virtual Hugs Are Germ-Free!
    Mom to Jon, 49, and Michael, 32, who were born with an undiagnosed progressive neuromuscular disease and courageous spirits. Our Angel Michael received his wings in 2003. Our Angel Jon received his wings April 2019. April 2020, Jim, the world's most wonderful Dad, joined them. Now, they all watch over me.

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  11. #6
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    Thank you Rose and ANN.
    Today I swam without the usual spasticity and I had taken Klonopin 2 hours prior rather than ativan 90 minutes prior. Could be accident.
    The cover is now on the pool. DH cut it in such a way that it is easier for me to be in the water and pull the cover back over the water. Still need him to pull it off.

    Tomorrow is IVIG all day. Waiting to hear from the bac pump doc as to whether I am a candidate for it..

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    Great news about no spasticity, Sunshine. Fingers crossed.

    ANN
    There comes a time when silence is betrayal.- MLK

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    That is good news re the swim Sunshine. I hope this just continues on and is really a help.

    I went to get hair done yesterday, through drive thru bank and pharmacy. Then I went to grocery store for a much shorter period of time than usual. Didn't get very much. I did get very dizzy trying to look up at top shelves and trying to get some yogurt off top shelf. I knocked one small container off and it broke on the floor. There was no one around to ask for help and by then I was so dizzy that I was scared and just needed to get out. I had to push the container under the lowest shelf with my foot and get out thru the line as quick as I could.

    My step count for yesterday was 1236.
    Virginia

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    Virginia, I've had problems with looking up too--for years. I'm pretty much out of the habit of looking up by now, at least when trying to walk around. For some reason it's worse if I've been walking around. It's a weird feeling of almost-dizziness.
    MS, diagnosed 1980. Avonex 2001-2004. Copaxone 2006-2009.

    "Always put off until tomorrow whatever you think you should do today." --Anonymous



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  19. #10
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    ((((((Hugs to All)))))) ~

    Sunshine ~

    My guess is the Klonopin worked, and I hope I'm right. You definitely deserve a break, and anything, which helps you is a blessing.

    Prayers that IVIg goes smoothly for your tomorrow.

    Virginia ~

    Your dizziness in the store sounds scary to me. Do you have any idea what might be causing the dizziness? I'm worried about you. Sending prayers for the dizziness to subside.

    I'm exercising my ability to stave off anxiety, stress and fear. I'm watching the election returns. And pacing.

    Healing, positive energy to all ~

    Love & Light,



    Rose

    *Virtual Hugs Are Germ-Free!
    Mom to Jon, 49, and Michael, 32, who were born with an undiagnosed progressive neuromuscular disease and courageous spirits. Our Angel Michael received his wings in 2003. Our Angel Jon received his wings April 2019. April 2020, Jim, the world's most wonderful Dad, joined them. Now, they all watch over me.

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