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Thread: Undiagnosed and getting worried :(

  1. #1
    New Community Member
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    Dec 2019
    Plymouth, England

    Default Undiagnosed and getting worried :(

    Evening all, I am new here so would firstly like to say a big hello from Plymouth, England :).

    I have a condition which is starting to worry me and which is seemingly impossible to diagnose so I am turning to the internet for help.

    A few years back I was watching TV and I noticed something wasnít right with my left eye it was kind of shimmery like someone had shone a torch in my eyes. This came and went over the next few months until one night I pretty much lost the vision in both eyes for a minute or so in a kind of pool of black and shimmering, I took myself to A and E thinking I was having a stroke but they found nothing but the doctor said he was sure it was an eye problem. I have seen a specialist who assures me after numerous visits and tests that the eyes and the nerves between the eyes and brain are fine. I have over the last 6 months started to get sharp pains in my left eye and occasionally the right and also strange dull headaches that seem to rob me of myself and make me feel like an empty shell and sometimes dizzy. I was referred to see another specialist in headaches who assures me this is a weird type of migraine with visuals but itís happening so often and feels so bizarre I am sure he is wrong and Iím starting to get anxious etc.

    Any thoughts or advice would be greatly appreciated.

    Regards Richard Brown.

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  3. #2
    Distinguished Community Member Earth Mother 2 Angels's Avatar
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    Oct 2006
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    ((((((Richard Brown)))))) ~


    I'm sorry that you're enduring pain and vision issues. I'm not sure whether I have anything to offer you in the way of help, but I did want to welcome you to our community.

    When you say that you've seen specialists, are you referring to an ophthalmologist for your eyes and a neurologist for your headaches? Among the tests you've had, were a CT scan and a brain MRI included? If not, then I suggest that you ask for those tests.

    Here is an article pertaining to vascular headaches, but it also discusses migraines:

    Are you taking any medications to treat your pain?

    I always have lots of questions for new members, because more information helps us to be more supportive.

    Sending healing energy your way, Richard ~

    Love & Light,

    Mom to Jon, 49, (seizure disorder; Gtube; trache; colostomy; osteoporosis; hypothyroid; enlarged prostate; lymphedema, assorted mysteries) and Michael, 32, (intractable seizures; Gtube), who were born with an undiagnosed progressive neuromuscular disease and courageous spirits. Our Angel Michael received his wings in 2003. Our Angel Jon received his wings April 2019. Now, they watch over Jim and me.

  4. #3
    Distinguished Community Member agate's Avatar
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    Oct 2006
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    Hi, Richard,
    I can't add anything to what Rose just said. I'd definitely be concerned enough to continue looking for answers, and that may mean visiting a couple of specialists and having more tests. I believe migraines can take the form you describe but we're not MDs here.

    Welcome to this BrainTalk board!
    MS, diagnosed 1980. Avonex 2001-2004. Copaxone 2006-2009.

  5. #4


    I had a teacher that got migraines that would blind him. When he had one coming on, he had enough warning from his body, that if he left school immediately, he could drive home before his vision was too compromised. So it could be a migraine.

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  7. #5
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    Quote Originally Posted by pmmdam View Post
    This quote is hidden because you are ignoring this member. Show Quote
    I had a teacher that got migraines that would blind him. When he had one coming on, he had enough warning from his body, that if he left school immediately, he could drive home before his vision was too compromised. So it could be a migraine.
    Ow! That's awful. I had a teacher once with a similar problem. She would have to pull over and throw up on the way home too. She said her horrendous migraines made her more likely to have a stroke later on in life.
    Mild Spastic Diplegia Cerebral Palsy and bad proprioception.
    My website for my original short films!

  8. #6
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    had shingles around eye and i sort of get migraines-did you have shingles and PHN?
    "Here's an unpopular opinion: I'm actually not at all concerned about innocent men losing their jobs over false sexual assault/harassment allegations. Sorry. If some innocent men's reputations have to take a hit in the process of undoing the patriarchy, that is a price I am absolutely willing to pay." Teen Vogue writer Emily Lindin

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