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Thread: Keep on Moving: December 2019

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  1. #1
    Distinguished Community Member Sunshine's Avatar
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    Default Keep on Moving: December 2019

    MS creates some real challenges to keep on moving. It helps to inspire each other on how to find ways to move.

    Did you stretch in your bed, swing your arms, roll side to side today? Or perhaps you did housework? Or exercised in a pool? Tracked your count of steps? Chased your cat around the home? Pushed the wheelchair wheels with your arms at the store? Post them here and we can support and egg each other on.

    REMEMBER: this is a keep on moving thread, not keep on exercising! Any moving is important— it doesnt have to be “exercise”! Even Science proves that...

    RABBIT RABBIT!

    BTW: We are only one month away from 2020– (shudder)

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    Distinguished Community Member Lazarus's Avatar
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    Glad to see this post. I have not been stretching enough and my body is yelling at me to get up and move. There is a major snowstorm set to hit tomorrow and that got me out putting tarps over 4 vehicles. That works great to remove snow with minimal effort...the word minimal is relative.

    The storm is supposed to last all day Monday into Tuesday morning. I am supposed to get rituxan on Monday and doubt I will make it. 19 years of infusions and this may be the first one I miss! We live on a small isolated farm with a narrow road that the town does plow but late.

    Maybe I will just wait for spring...let it all melt. My father in law always said “ let the guy who put it there take i t away!”
    Linda~~~~

    Be the kind of woman that when your feet hit the floor each morning the devil says:"Oh Crap, She's up!"

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    Distinguished Community Member Sunshine's Avatar
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    Good Luck Laz! You are amazing in your Keep on Moving!
    Do they reschedule your Rituxan for next week, or how does that work?
    Waiting for DH to awaken so I can do my morning swim.

    It will dip into the 40’s Monday and Tuesday night, so no swimming Tuesday or Wednesday. Wed is IVIG anyway, so that was a no go...

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    Distinguished Community Member Lazarus's Avatar
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    Quote Originally Posted by Sunshine View Post
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    Good Luck Laz! You are amazing in your Keep on Moving!
    Do they reschedule your Rituxan for next week, or how does that work?
    Waiting for DH to awaken so I can do my morning swim.

    It will dip into the 40’s Monday and Tuesday night, so no swimming Tuesday or Wednesday. Wed is IVIG anyway, so that was a no go...


    Not sure about the reschedule and the second infusion is already scheduled so , since they are given 2 weeks apart, I am not sure what will happen. The storm seems to still have some ifs in terms of timing and amounts so I will be in a quandry. I am trying to just throw up my hands and stop fretting.
    Linda~~~~

    Be the kind of woman that when your feet hit the floor each morning the devil says:"Oh Crap, She's up!"

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    Distinguished Community Member agate's Avatar
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    Any chance that the infusion could be done in your home in a case like that?
    MS, diagnosed 1980. Avonex 2001-2004. Copaxone 2006-2009.

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    Distinguished Community Member Lazarus's Avatar
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    Quote Originally Posted by agate View Post
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    Any chance that the infusion could be done in your home in a case like that?
    Nope. I need the emergency personnel around.
    Linda~~~~

    Be the kind of woman that when your feet hit the floor each morning the devil says:"Oh Crap, She's up!"

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    Linda, I did not realize you had been doing Rituxan for 19 years. That is one reason you are able to do as much work as you do. Look what it did for Cherie. Would love to be able to take that drug.
    Virginia

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    Distinguished Community Member Lazarus's Avatar
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    Quote Originally Posted by Virginia View Post
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    Linda, I did not realize you had been doing Rituxan for 19 years. That is one reason you are able to do as much work as you do. Look what it did for Cherie. Would love to be able to take that drug.
    Sorry to be confusing. I have been doing infusions for my MS for 19 years. Before that I did betaseron, avonex and copaxone. I did novantrone for 2 years and IVIg for 8 years and some other chemo...I forget what they were. I have been doing rituxan for about 5 years.
    Linda~~~~

    Be the kind of woman that when your feet hit the floor each morning the devil says:"Oh Crap, She's up!"

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    Distinguished Community Member agate's Avatar
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    Quote Originally Posted by Lazarus View Post
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    Sorry to be confusing. I have been doing infusions for my MS for 19 years. Before that I did betaseron, avonex and copaxone. I did novantrone for 2 years and IVIg for 8 years and some other chemo...I forget what they were. I have been doing rituxan for about 5 years.
    You've had a wealth of experience with MS drugs, Linda!
    MS, diagnosed 1980. Avonex 2001-2004. Copaxone 2006-2009.

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    Distinguished Community Member agate's Avatar
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    Sunshine, it's good to know that this is still being done. I haven't been on a plane since 1988 (!) but back then it was a huge help. Once or twice it didn't work so well but by now they have probably fine-tuned it so it works better.
    Last edited by agate; 12-24-2019 at 08:32 AM.
    MS, diagnosed 1980. Avonex 2001-2004. Copaxone 2006-2009.

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