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Thread: Cafe where people can find out (a little) about what living with MS feels like

  1. #1
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    Default Cafe where people can find out (a little) about what living with MS feels like

    Video of cafe showing people what living with MS feels like:

    https://www.facebook.com/Independent.ie/videos/10156463868943470/

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    Distinguished Community Member Lazarus's Avatar
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    I watched it...I think it was clever but had trouble reading the subtitles and watching the video! It moved a bit too fast. Sort of ironic..
    Linda~~~~

    Be the kind of woman that when your feet hit the floor each morning the devil says:"Oh Crap, She's up!"

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  5. #3
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    Very interesting use of disability simulation.

    Laz, I find most FB videos to be fast like that unfortunately.
    Mild Spastic Diplegia Cerebral Palsy and bad proprioception.
    My website for my original short films! http://cripvideoproductions.com/astrokeofendurance.php

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    Yes, it moves fast and jerkily--and the sound isn't so easy to understand either. Very ironic.

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    Good idea. I found same problems as others with sound and jerkiness.

    Wish they would do more.

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  11. #6
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    The video may have been made on a low budget and isn't looking as professional as some. I'd like to cheer those people on though, for trying to call attention to some of the daily situations people with MS--and with some other neurological disorders--deal with.

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  13. #7
    Distinguished Community Member Earth Mother 2 Angels's Avatar
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    Thumbs up

    ((((((Hugs to All)))))) ~

    agate ~

    I cheer along with you for the effort made by the people, who created this cafe. I would imagine that it would take a bit of work and know how to do all that they did.

    They probably didn't have a professional videographer, so they did the best they could with what they had and could afford. They support charity. so they likely have a minimal budget.

    Could it be possible that the problems with sound and the jerkiness of the camera were part of their campaign? However subtle, it would have been helpful to have that clarified, if that were the case.

    I was inspired that this cafe wanted to bring awareness to the challenges facing people with MS. Sometimes, we have to do dramatic things to get people's attention.

    According to the customers, who were interviewed, that objective was accomplished.

    Love & Light,



    Rose
    Mom to Jon, 49, (seizure disorder; Gtube; trache; colostomy; osteoporosis; hypothyroid; enlarged prostate; lymphedema, assorted mysteries) and Michael, 32, (intractable seizures; Gtube), who were born with an undiagnosed progressive neuromuscular disease and courageous spirits. Our Angel Michael received his wings in 2003. Our Angel Jon received his wings April 2019. Now, they watch over Jim and me.

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    Distinguished Community Member Sunshine's Avatar
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    This is very cool.
    Sound is hard on SPSers, so I often mute things and read the subtitles instead of doing both. ... and I watch at least twice. Try that? My meds also make it hard to understand and concentrate on fast paced dialogue in videos, movies etc.

    Thanks for posting this agate!!!

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