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Thread: Keep on Moving Thread: August 2019

  1. #1
    Distinguished Community Member Sunshine's Avatar
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    Default Keep on Moving Thread: August 2019

    MS creates some real challenges to keep on moving. It helps to inspire each other on how to find ways to move.

    Did you stretch in your bed, swing your arms, roll side to side today? Or perhaps you did housework? Or exercised in a pool? Tracked your count of steps? Chased your cat around the home? Pushed the wheelchair wheels with your arms at the store? Post them here and we can support and egg each other on.

    REMEMBER: this is a keep on moving thread, not keep on exercising! Any moving is important— it doesnt have to be “exercise”! Even Science proves that...

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    Distinguished Community Member Sunshine's Avatar
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    I plan to go surfing Saturday if there is no lightning. If we get skunked by lightning, will go out for a beachside brunch with DH instead....I Have started the packing: The car seats are reconfigured to hold my 9’2” long board, the head rest is removed from the seat that was folded back. The saw horses of clean up of board afterwards are in position. I pulled down my 3 beach coolers and my back pack.

    Tomorrow I will dole out the right pills, call to reserve the R2D2, and set up my pill schedule altered to accommodate the surf adventure.

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    Distinguished Community Member Sunshine's Avatar
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    Today i swam 22 minutes, 800 yards. Rested. Cooked supper. Resting.

    Might surf Sat depending on lightning and wheelchair availability.

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    Good work, Sunshine.

    Today I walked a block to the bus and went to Centre Street. I shopped at 3 stores and checked my app and saw that the next bus homeward was in 24”. So I walked. :-)

    Doing laundry now which requires many steps/stairs.
    ANN
    There comes a time when silence is betrayal.- MLK

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    Distinguished Community Member Sunshine's Avatar
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    That’s amazing ANN— how are you able to do so much walking?

    Today I swam 800 yards in 22 minutes. Then the skies opened up anyway. I checked my raised porch planters as they have a water well underneath it at the bottom of the box. (From SAMs CLub) The gauge said it was way to full from this monsoon yesterday and could rot my roots. So, I drained it by putting a bucket under each. Carried the very heavy bucket, felt like >20lbs, and dumped the brown water out of screen house in the grass. Twice... a risky move, but I was desperate.

    Will have to do it again, because a full bucket on partly reduced the water table, and we are supposed to get more monsoons today..

    Tomorrow I am supposed to go surfing. Spending this afternoon doing the physical preparations for it and making a timetable of doses, wake up time, leave the house time etc etc. Plotting a war is the name of the game with this blasted disease. Hope, hope , hope the park has the Beach wheeelchair ready for me....

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    Distinguished Community Member agate's Avatar
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    Sunshine, I have water collecting in the drainage saucers underneath my plants too. That's so true about root rot as an ugly possibility. For my outdoor plants I've found it's important to keep pouring the water out of those saucers just because mosquitoes breed in standing water. So I get out there after a rain and pour the water out.

    ANN, all that you did yesterday is perfectly amazing. Do you take quite a few rest breaks?
    i don't trip--I do random gravity checks.

    MS diagnosed 1980. Avonex 2002-2005. Copaxone 6/07 - 5/10.
    Member of this MS board since 2001.

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    Most of my deficits are brain and cranial nerves. I’ve never had a spinal lesion show on MRI. I must have some as I have the hug and other paresthesias though some of that could be from spinal stenosis.

    I am in pretty good MS shape. I joked that I was my specialists healthiest patient. She said I wasn’ But maybe her healthiest 69 y/o. There you go, Howie!
    ANN
    There comes a time when silence is betrayal.- MLK

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    Ann, you definitely are able to do a lot of walking. What a blessing. Howie, you can add Ann to your age list.

    Sunshine, great going for you.

    I went to bank drive thru and then to Costco to pick up a prescription. Never go to Costco on a Friday close to the first of the month. When I saw the traffic around Costco I felt like turning around, but I had to have the rx. I actually was able to get a handicap parking spot. So I walked across the store, then went to Harris Teeter and grocery shopped, then stopped at Panera and got something for tonight. I go to Panera a lot more than I want to because it is so close and because they advertise their food as not having any MSG. I am tired and really it was not that much.
    Virginia

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    Today I walked to and from my usual hair salon - six blocks total.

    This evening we went to Home Depot for some potting soil and then to Savers, a really large resale shop. During the winter I watched a lot of videos of people “thrifting” and reselling the items on eBay. I enjoy seeing vintage items and occasionally buying. Today was just enjoyable looking. It counts as walking.

    ANN
    There comes a time when silence is betrayal.- MLK

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  19. #10
    Distinguished Community Member Sunshine's Avatar
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    An hour after taking an Ativan early morning, I went surfing with my crew. The Wheelchair was there as planed for!
    I lasted two hours surfing until the stiffening began to creep in. So, I got plenty of waves and had time to enjoy the socializing.

    The waves were clean thigh high rollers in sets of 3, they had some punch to them which made the rides zippier. I still have trouble with balance and popping up, so you never know when I will suddenly get thrown off the board! But its all in good fun.

    There was a guy there , a rule breaker, who looked like Robt Mueller in his younger days. Stayed clear of him...

    To not be in pain and to be able to enjoy the ocean with only mild fear, is a real blessing. I felt younger, looked younger and had a blast on teh waves.

    I depend upon friends and husband to help make it happen with driving, supervising, wheeling me to the shoreline. So i am judicious about when to ask. But DH volunteered for today, so I said “yes”.

    I am utterly exhausted. And then I cam home and zipped around the house like a well person, straightening up this, putting away the surf detritus, emptying planter of excess rain, cleaning up. It was amazing to move so much better.

    Thank you ativan.

    Now, why cannot pharma make a drug that does the same thing but doesnt develop tolerance and isn’t addictive???I would take it every day. When I am on it, I realize how much impaired I truly am by SPS.

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