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Thread: Functional Neurological Disorderó perhaps not functional

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    Distinguished Community Member Sunshine's Avatar
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    Default Functional Neurological Disorderó perhaps not functional

    Functional, means that the neuro symptoms are caused by psych problems.

    Here is an interesting article that shows that there are actual biological pathology in the brain of those dxd as FND...

    https://n.neurology.org/content/earl...000007717.long

    We donít know if it causes the FND symptoms, or is just correlated. But still. It speaks to people who are told, You donít have MS you have FND (blame the patients psyche on the problem) or you donít have SPSyou have FND (a frequent misdiagnosis in people with Stiff Person Syndrome.)

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    Distinguished Community Member agate's Avatar
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    I think that "functional" means that the cause of the problem is still unknown and no evidence of abnormality has yet been found. I've heard that it's often taken as a code word for "psychogenic" though.
    MS diagnosed 1980. Avonex 2002-2005. Copaxone 6/07 - 5/10.
    Member of this MS board since 2001.

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    Distinguished Community Member Sunshine's Avatar
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    Quote Originally Posted by agate View Post
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    I think that "functional" means that the cause of the problem is still unknown and no evidence of abnormality has yet been found. I've heard that it's often taken as a code word for "psychogenic" though.
    Yes, it is the doctors way of masking their feelings that its the patients fault they are sick. If they would just not be so crazy, these problems would go away.

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    Distinguished Community Member agate's Avatar
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    There definitely is that attitude among some doctors. But sometimes they're trying but just can't find an answer. They're not supposed to sit in judgment of their patients. If a patient brings in a concern, it's the doctor's job to deal with it, not judge it as the product of a disordered mind. One problem is that most doctors have had at least a little psychiatric training and consider themselves qualified to make snap diagnoses. They see a couple of patients who fit the hypochondriac profile, and the next one that comes along who vaguely resembles those others gets pigeonholed into that category.
    MS diagnosed 1980. Avonex 2002-2005. Copaxone 6/07 - 5/10.
    Member of this MS board since 2001.

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    Distinguished Community Member Earth Mother 2 Angels's Avatar
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    ((((((Hugs to All)))))) ~

    Is "functional" the new word to replace "idiopathic?"

    It seems like a catch-all phrase for "We know something is wrong, but we don't know what or why it is."

    In the old days, when my sons were born, the word was "undiagnosed."

    Love & Light,



    Rose
    Mom to Jon, 49, (seizure disorder; Gtube; trache; colostomy; osteoporosis; hypothyroid; enlarged prostate; lymphedema, assorted mysteries) and Michael, 32, (intractable seizures; Gtube), who were born with an undiagnosed progressive neuromuscular disease and courageous spirits. Our Angel Michael received his wings in 2003. Our Angel Jon received his wings April 2019. Now, they watch over Jim and me.

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    Distinguished Community Member agate's Avatar
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    Quote Originally Posted by Earth Mother 2 Angels View Post
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    ((((((Hugs to All)))))) ~

    Is "functional" the new word to replace "idiopathic?"

    It seems like a catch-all phrase for "We know something is wrong, but we don't know what or why it is."

    In the old days, when my sons were born, the word was "undiagnosed."

    Love & Light,





    Rose
    Yes, "idiopathic" and "functional" are the two catch-all terms designed so that doctors won't have to come out and say they just don't know what's going on. Everyone expects them to be all-knowing, and it upsets them if they have to admit that there are some things they haven't figured out yet, I guess.
    MS diagnosed 1980. Avonex 2002-2005. Copaxone 6/07 - 5/10.
    Member of this MS board since 2001.

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    Distinguished Community Member Sunshine's Avatar
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    I wish they would say,”I don’t know what’s going on with you, but we will work together to figure this puzzle out and come up with a treatment plan. Some neurological problems are so complex with different symptoms and lab results that they require following over time to figure out”.

    This is essentially what Dr. Vollmer at Yale, at that time, said to me, as did the local doc I settled on to provide ongoing care. I respected them for that.
    Last edited by Sunshine; 06-22-2019 at 01:47 AM.

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    My doctor was straight with me: I know you have MS, every MRI shows the lesions on your brain. But I don't know if this issue of dangerously low white platelets, or a low thyroid, or a low temperature are related, or if there is something else going on. Or why it is that you lapse into unconsciousness and get out of touch with reality when an infection takes hold. I don't want to give you meds that .ight mask those symptoms until we find the cause...so let's work on that.

    And now I have a list of specialists to see, and have to undergo blood tests, to see if there are any definitive answers there.

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    Distinguished Community Member Lazarus's Avatar
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    Quote Originally Posted by Catdancer View Post
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    My doctor was straight with me: I know you have MS, every MRI shows the lesions on your brain. But I don't know if this issue of dangerously low white platelets, or a low thyroid, or a low temperature are related, or if there is something else going on. Or why it is that you lapse into unconsciousness and get out of touch with reality when an infection takes hold. I don't want to give you meds that .ight mask those symptoms until we find the cause...so let's work on that.

    And now I have a list of specialists to see, and have to undergo blood tests, to see if there are any definitive answers there.
    I like your doctor’s approach. Good luck to both of you!
    Linda~~~~

    Be the kind of woman that when your feet hit the floor each morning the devil says:"Oh Crap, She's up!"

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    Distinguished Community Member Jeanie Z's Avatar
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    Smile

    :) Ann you are in my prayers. Good luck. Jeanie :)

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