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Thread: Burning pain in head - can't even cry

  1. #31
    Distinguished Community Member tic chick's Avatar
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    Oct 2006


    hello hwo ,

    i used to post quite regularly in the tourette syndrome forum, but it's been quiet for quite awhile now.

    i remember a person who thought they had tourette syndrome. it turned out to be something different, something called "benign fasciculation syndrome". here are a couple articles on it. one article lists possible causes of fasciculations that are serious diseases. the other discusses benign fasciculation syndrome itself.

    i think getting a sleep study is great because fatigue can cause fasciculations. also, asking the neuro about the other list of serious diseases that cause fasciculations can help rule those out. i hope this helps.

    BFS is rare, and the exact cause is still unknown. One theory is that BFS is a response to a viral infection.

    Fasciculations themselves can have a range of causes, including the use of certain substances or medications, especially allergy drugs.

    Drugs that may trigger fasciculations include:

    chlorpheniramine (Chlorphen SR)
    dimenhydrinate (Dramamine)
    diphenhydramine (Benadryl)
    nortriptyline (Pamelor)
    methylphenidate (Ritalin)
    pseudoephedrine (Sudafed)

    These twitches will usually subside when the person stops taking the medication and do not cause BFS.

    Muscle twitches may also be due to trauma and injury or may be symptoms of anxiety or depression. They can sometimes be linked to other stress-related symptoms such as irritable bowel syndrome, heartburn, and headache.

    Some people who lack certain minerals, such as magnesium or calcium, may also develop muscle twitches.

    Fasciculations may also be linked to other routine factors such as:

    strenuous exercise
    drinking alcohol
    smoking cigarettes
    caffeine intake

    Less commonly, fasciculations may be the sign of something more serious. These may include illnesses or conditions that affect the nervous system, either directly or indirectly.

    Among them:

    Amyotrophic lateral sclerosis (also known as Lou Gehrig's disease) and other motor neuron diseases
    Spinal muscle atrophy, a genetic disorder of the spinal nerves
    Peripheral nerve damage
    Spinal injury
    Paraneoplastic syndrome, a cancer-related nerve disorder
    Schwartz-Jampel syndrome, a genetic nervous system disorder
    Moersch-Woltmann syndrome (also referred to as "stiff person syndrome")
    thank you for sharing and reading,
    jeannie (tic chick)
    WE ARE BT!
    "The world is a better place when you're barefoot." Mark
    "Don't go there unless you know the way back." TC
    "...there will be an answer. Let it be." Paul McCartney

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  3. #32
    Distinguished Community Member
    Join Date
    Oct 2006
    North Carolina


    HWO, so glad to see you back. We have been concerned. Thankfully you have an appointment with an ALS specialist. Will be very interested to hear what he has to say. Good for you for staying on top of this.

    I thought what Tic Chic had to post was something you might want to think about checking out if ALS is hopefully ruled out.

    Good luck to you on this next appointment. Will want to hear from you.

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  5. #33
    Distinguished Community Member agate's Avatar
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    Oct 2006
    Blog Entries


    Thank you for posting an update, HWO. Having to go without sleep as you've been doing can cause a lot of problems. I hope some of yours will go away after you've had adequate sleep.

    Everyone I know who's had a sleep study done has had to go to a special lab for an overnight stay but there are ways of doing the study at home. Apparently a doctor has to prescribe it.

    Hope you don't have ALS--and hope that the sleep study will provide some answers for you.
    MS, diagnosed 1980. Avonex 2001-2004. Copaxone 2006-2009.

    "Always put off until tomorrow whatever you think you should do today." --Anonymous

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  7. #34
    Distinguished Community Member Earth Mother 2 Angels's Avatar
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    Oct 2006
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    ((((((HWO)))))) ~

    I'm so sorry for all that you're enduring. I hope the apnea machine gives you some helpful information, because I agree with others that some of your symptoms correlate with sleep apnea. Sleep deprivation can cause many medical problems.

    Have you had blood tests to check magnesium, calcium, potassium, sodium, various vitamin levels? Thyroid test? Have you had a PET scan of your entire body? Or even a CAT scan to rule out any pulmonary problems? Or intestinal issues? Have you had an EEG to rule out seizures? How is your blood pressure? Do you take it a few times a day?

    Is there any possibility that you could get a referral from Kaiser to see a specialist at Stanford?

    I'm sending you healing, positive energy and prayers.

    Love & Light,

    Mom to Jon, 49, and Michael, 32, who were born with an undiagnosed progressive neuromuscular disease and courageous spirits. Our Angel Michael received his wings in 2003. Our Angel Jon received his wings April 2019. April 2020, Jim, the world's most wonderful Dad, joined them. Now, they all watch over me.

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