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Thread: June Chit Chat

  1. #111
    Distinguished Community Member Sunshine's Avatar
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    ThnK YOU ROSE!

    Jeanie, Rose eloquently stated my position in a way that is a good road map for you. If you donít have the energy to follow it, please show it to Andy and get his help on board.

    This is the sorry state of modern med. Instead of socialized med like Canada or England, we have corporatized med. You must advocate for yourself. God would expect nothing less of you. Do not only rely on God to slay these dragons, but to ask his help in comforting you as you deal with man made inhumane response to your condition.

    You have an adaventurous spirit and Andy has your backó-I know the two of you can do this. We all hate to see you suffer like this, on top of the physical suffering you have endured.

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  3. #112
    Distinguished Community Member Sunshine's Avatar
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    No see ums dont leave any itchy bumps. Or at least the ones that hound my surfing crew. They are miserable because they hound you and swarm you though!

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  5. #113
    Distinguished Community Member Sunshine's Avatar
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    IVIG all day today.

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  7. #114
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    Good luck with the IVIG, Sunshine.

    ANN
    There comes a time when silence is betrayal.- MLK

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  9. #115
    Distinguished Community Member Jeanie Z's Avatar
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    Smile

    :) Thanks all. I have the PT coming at 4 PM today. I threatened to change medical companies. I am headed in to nap now. Jeanie :)

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  11. #116
    Distinguished Community Member agate's Avatar
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    On my iPad while cooling off at the optical department where I finally got the new glasses I probably should have got 8 months ago. It's going to be 97' today and it feels pretty warm already. Usually I go nowhere in such hot weather but I wanted the glasses and decided to take a chance on finding everyone's air conditioning in working order.

    So far,so good.
    MS, diagnosed 1980. Avonex 2001-2004. Copaxone 2006-2009.

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  13. #117
    Distinguished Community Member Earth Mother 2 Angels's Avatar
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    Thumbs up

    ((((((Hugs to All))))))~

    Jeanie ~

    Quote Originally Posted by Jeanie Z View Post
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    :) Thanks all. I have the PT coming at 4 PM today. I threatened to change medical companies. I am headed in to nap now. Jeanie :)
    Way to go! Congratulations! I'm so happy you had PT today. Sweet dreams during your nap!

    Love & Light,



    Rose
    Mom to Jon, 49, (seizure disorder; Gtube; trache; colostomy; osteoporosis; hypothyroid; enlarged prostate; lymphedema, assorted mysteries) and Michael, 32, (intractable seizures; Gtube), who were born with an undiagnosed progressive neuromuscular disease and courageous spirits. Our Angel Michael received his wings in 2003. Our Angel Jon received his wings April 2019. Now, they watch over Jim and me.

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  15. #118
    Distinguished Community Member Sunshine's Avatar
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    IVIG went well. No spasms.

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  17. #119
    Distinguished Community Member Howie's Avatar
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    Cool

    I had another chigger memory. We put mom's clear nail polish on the bumps which is where they have dug into your skin. The nail polish would cut them off from the air, and they would smother to death.

    A memory, or a nightmare? You decide!
    Evolution spans the Universe.

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  19. #120
    Distinguished Community Member agate's Avatar
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    Doesn't sound exactly soothing to the skin but if it worked, great. Chiggers burrow, I think. They don't just bite. The actual chigger digs into your skin but you don't see the chigger.

    Tonight maybe you can watch "Day of the No-Seeums." Maybe they're benevolent aliens who come bringing goodies.
    MS, diagnosed 1980. Avonex 2001-2004. Copaxone 2006-2009.

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